Ticks and Lyme disease are far too common and not at all discriminating. There are over 329,000 new cases of Lyme disease each year in the US and more than half a million Americans suffering from long-term or late-stage Lyme disease. Some are fortunate to be diagnosed and treated early, but for some the path to a cure is long and challenging.  Here we share some powerful stories of resilience and hope in the face of this debilitating and perplexing disease.

Are you interested in sharing your story? We’d like to hear from you.

Thalia
Thalia

Maisie M.

Washington, DC
"I am invisibly sick ... but I am at war with Lyme."
Read Maisie's Story
Musician Bill Chinnock
Actress Karen Allen

Sharane D.

Maricopa County, AZ
"I am going to do what I can to make sure no one else has to go through my nightmare."
Read Sharane's Story

Dr. Rachel H.

Santa Clara County, CA
"I no longer see my health journey as a curse."
Read Dr.'s Story
Trae V.

Trae V.

San Mateo County, CA
"Everyone knows somebody with Lyme — they just don’t know it yet."
Read Trae's Story
Competitive miler Drew Hunter

Andrew G.

Solano County, CA
"I believe my son, Andrew, was killed by Lyme."
Read Andrew's Story
Susan B.
Susan B.

Neil Spector, MD

Oncologist, Author, and Lyme patient
"I was in the active peak of my life, but it was like I was an old man."
Read Neil's Story

Allie C.

Westchester County, NY
"It's time to make some noise."
Read Allie's Story
Jane Alexander
Pres. Toomas Hendrik Ilves

Laird C.

Spouse and caregiver
"It's a very, very scary situation to go through ... for the patient and for loved ones."
Read Laird's Story
Amy Tan
Amy Tan
Brenton Tyler Hoffman
Brenton Tyler Hoffman
Tennis pro Samantha Stosur
Kathleen Hanna
Kathleen Hanna
Louis S

Louis S.

San Mateo County, CA
"My mom says she remembers the day my personality came back."
Read Louis's Story
Kris Kristofferson

Tory C.

Sonoma County, CA
"I will fight this disease and I will get my life back! "
Read Tory's Story

Sarah H.

Williamson County, TN
"I had no idea the tests were so inaccurate."
Read Sarah's Story
Tim Simpson
Wendy A.
Wendy A.

Briana B.

Butte County, CA
"I am ready to take back my life."
Read Briana's Story

Ari S.

San Mateo County, CA
"Don’t try to do it on your own. It’s too hard. Get help."
Read Ari's Story
Tom Seaver
Tom Seaver
Writer David Michael Conner
Avril Lavigne
Courtesy of Independent Sports News
Olympian Kristen Sweetland
Anwar Hadid
Jennifer Capriati
Christy Turlington
Christy Turlington
George W. Bush
George W. Bush
Mel Clarke
Mel Clarke
Author Jordan Fisher Smith
Angeli Vanlaanen

Angeli Vanlaanen

Professional Freeskiier
"My story of going years undiagnosed is all too common."
Read Angeli's Story
Pete Seeger

Kyla C.

San Mateo County, CA
"Don't give up. You are not alone."
Read Kyla's Story

Dana Parish

Singer Songwriter
"I had the CDC-recommended 21 days of Doxy... I fully believed I'd be okay."
Read Dana's Story
UFC fighter Jim Miller
BBC Reporter Allan Little
Debbie Gibson
Debbie Gibson
US Track Star Perry Fields
Marla Maples
Fontayne F.
Fontayne F.

Robert Buelteman

San Mateo County, CA
"I knew something was very wrong."
Read Robert's Story
Michelle T.

Michelle T.

Marin County, CA
"Are we gonna beat this? Absolutely. Can we find a cure? Absolutely."
Read Michelle's Story
Author Eric Karlan
Parker Posey
Parker Posey
Entrepreneur John Caudwell

Kayla D.

Harris County, TX
"It never occurred to me that something else could be going on."
Read Kayla's Story

Jonathan Locke

Bernalillo County, NM
"Chronic Lyme is like stepping through the looking glass straight into Hell."
Read Jonathan's Story

KÊTA

Singer/Songwriter
"People need to know. Lyme is the fastest-growing infectious disease in the world!"
Read KÊTA's Story
Ben Stiller
Ben Stiller
Actress Martine McCutcheon
Kelly Osbourne

Katherine H.

Sonoma County, CA
"The miracle happened when we were at the darkest point in Lyme disease."
Read Katherine's Story
Dr. Kristin Honey

Christina C.

Alameda County, CA
"Many people know very little about Lyme. I'm going to change that."
Read Christina's Story
Jordan Yallen
Richard Gere
Richard Gere
Scott A.
Scott A.
Ashley Olsen
USA Triathlete Peter Weaver
HS Tennis Star Camryn C.
Jamie-Lynn Sigler
Jamie-Lynn Sigler
Singer-songwriter Jesse Ruben
Peter Sarsgaard
Peter Sarsgaard
Gary Player
Triathlete Mary Beth Ellis

Elet Hall

Freerunner, Parkour Athlete, and American Ninja Warrior
"I just want to get my body to a point where I can do what I want to do."
Read Elet's Story
Kyle Morton
Kyle Morton
Kari M.

Kari M.

Sonoma County, CA
"Lyme is life-changing, pain, pain, and more pain."
Read Kari's Story
Rebecca Wells
Rebecca Wells
Jesse Colin Young
Jesse Colin Young
Musician Elijah Blue Allman

Laure W.

San Mateo County, CA
"I felt like I lost my life for almost two years..."
Read Laure's Story
Melissa M.
Melissa M.
Nenah Cherry
Nenah Cherry

Heather F.

Montgomery Country, MD
"Do not doubt yourself, but mostly, do not give up hope."
Read Heather's Story
Comedian Akilah Hughes
NHL player Lukas Bengtsson
Gretchen Carlson
Gretchen Carlson
Alix M.

Alix M.

Santa Clara County, CA
"Chronic Lyme is a living death"
Read Alix's Story

Jenn B.

Alameda County, CA
"I hope this account of my struggle helps educate the public and enlighten medical professionals."
Read Jenn's Story
Tessa Wallace
Tessa Wallace
Brooke Landau
Brooke Landau
Actor/Producer Ariel Stein

Daryl Hall

Musician, Hall & Oates
"People don't understand. Lyme disease is serious stuff."
Read Daryl's Story
Elena Delle Donne
Elena Delle Donne
Crystal Harris
Ally Hilfiger

Alan B.

Middlesex County, MA
"At some point, we will all be liberated from this nightmare."
Read Alan's Story

Bella M.

Lee County, FL
"This is not easy. Life gets harder every day."
Read Bella's Story
Kathleen O.
Kathleen O.
Lia G.

Lia G.

Alameda County, CA
"Lyme disease: it’s real, folks."
Read Lia's Story

Camille A.

Spouse, mother, and caregiver
"The amount of suffering [from Lyme disease] is inexcusable!"
Read Camille's Story
“Real Housewife” Amber Marchese
Ink Master Geary Morrill
PGA Champion Jimmy Walker
Chef Kirk Haworth
Voice Contestant Ryan Quinn

Shelby A.

Butte County, CA
"My hope is that one day Lyme disease will be treated quickly and correctly…"
Read Shelby's Story
Shania Twain

Phil G.

Leelanau County, MI
"I’m finally starting to feel like myself again."
Read Phil's Story
Olympian Christie Rampone
Dancer Brendan Saye
Reality TV star Irene McGee

Shymala H.

Contra Costa County, CA
"You are your own medical advocate ... Do NOT give up."
Read Shymala's Story
Bella Hadid
Alice Walker
Alice Walker
Yolanda Foster
Yolanda Foster