Ticks and Lyme disease are far too common and not at all discriminating. There are over 329,000 new cases of Lyme disease each year in the US and more than half a million Americans suffering from long-term or late-stage Lyme disease. Some are fortunate to be diagnosed and treated early, but for some the path to a cure is long and challenging.  Here we share some powerful stories of resilience and hope in the face of this debilitating and perplexing disease.

Are you interested in sharing your story? We’d like to hear from you.

Amy Tan
Amy Tan

Allie C.

Westchester County, NY
"It's time to make some noise."
Read Allie's Story

Maisie M.

Washington, DC
"I am invisibly sick ... but I am at war with Lyme."
Read Maisie's Story
Dancer Brendan Saye
Scott A.
Scott A.
Musician Elijah Blue Allman
Crystal Harris
Jennifer Capriati
Jordan Yallen
Tom Seaver
Tom Seaver
Ashley Olsen

Neil Spector, MD

Oncologist, Author, and Lyme patient
"I was in the active peak of my life, but it was like I was an old man."
Read Neil's Story

KÊTA

Singer/Songwriter
"People need to know. Lyme is the fastest-growing infectious disease in the world!"
Read KÊTA's Story
Richard Gere
Richard Gere
USA Triathlete Peter Weaver
Melissa M.
Melissa M.

Jonathan Locke

Bernalillo County, NM
"Chronic Lyme is like stepping through the looking glass straight into Hell."
Read Jonathan's Story
Pete Seeger
NHL player Lukas Bengtsson

Daryl Hall

Musician, Hall & Oates
"People don't understand. Lyme disease is serious stuff."
Read Daryl's Story
Angeli Vanlaanen

Angeli Vanlaanen

Professional Freeskiier
"My story of going years undiagnosed is all too common."
Read Angeli's Story
Trae V.

Trae V.

San Mateo County, CA
"Everyone knows somebody with Lyme — they just don’t know it yet."
Read Trae's Story

Christina C.

Alameda County, CA
"Many people know very little about Lyme. I'm going to change that."
Read Christina's Story

Elet Hall

Freerunner, Parkour Athlete, and American Ninja Warrior
"I just want to get my body to a point where I can do what I want to do."
Read Elet's Story
Wendy A.
Wendy A.
Avril Lavigne

Katherine H.

Sonoma County, CA
"The miracle happened when we were at the darkest point in Lyme disease."
Read Katherine's Story
Bella Hadid

Dana Parish

Singer Songwriter
"I had the CDC-recommended 21 days of Doxy... I fully believed I'd be okay."
Read Dana's Story
Tim Simpson
Kris Kristofferson
Parker Posey
Parker Posey
Comedian Akilah Hughes
BBC Reporter Allan Little
Writer David Michael Conner

Bella M.

Lee County, FL
"This is not easy. Life gets harder every day."
Read Bella's Story
Alice Walker
Alice Walker
Jesse Colin Young
Jesse Colin Young

Kyla C.

San Mateo County, CA
"Don't give up. You are not alone."
Read Kyla's Story
Alix M.

Alix M.

Santa Clara County, CA
"Chronic Lyme is a living death"
Read Alix's Story

Alan B.

Middlesex County, MA
"At some point, we will all be liberated from this nightmare."
Read Alan's Story
Ally Hilfiger
Debbie Gibson
Debbie Gibson
Yolanda Foster
Yolanda Foster
Michelle T.

Michelle T.

Marin County, CA
"Are we gonna beat this? Absolutely. Can we find a cure? Absolutely."
Read Michelle's Story
Brooke Landau
Brooke Landau
Ink Master Geary Morrill
Actor/Producer Ariel Stein

Briana B.

Butte County, CA
"I am ready to take back my life."
Read Briana's Story
Ben Stiller
Ben Stiller
Lia G.

Lia G.

Alameda County, CA
"Lyme disease: it’s real, folks."
Read Lia's Story

Sharane D.

Maricopa County, AZ
"I am going to do what I can to make sure no one else has to go through my nightmare."
Read Sharane's Story

Dr. Rachel H.

Santa Clara County, CA
"I no longer see my health journey as a curse."
Read Dr.'s Story
Jamie-Lynn Sigler
Jamie-Lynn Sigler

Kayla D.

Harris County, TX
"It never occurred to me that something else could be going on."
Read Kayla's Story
Entrepreneur John Caudwell
Rebecca Wells
Rebecca Wells
Competitive miler Drew Hunter
Kyle Morton
Kyle Morton
Dr. Kristin Honey
Mel Clarke
Mel Clarke
Christy Turlington
Christy Turlington

Ari S.

San Mateo County, CA
"Don’t try to do it on your own. It’s too hard. Get help."
Read Ari's Story
Marla Maples
Peter Sarsgaard
Peter Sarsgaard
Kathleen Hanna
Kathleen Hanna
Jane Alexander
Thalia
Thalia

Camille A.

Spouse, mother, and caregiver
"The amount of suffering [from Lyme disease] is inexcusable!"
Read Camille's Story
Susan B.
Susan B.
Gretchen Carlson
Gretchen Carlson
Triathlete Mary Beth Ellis
Elena Delle Donne
Elena Delle Donne
George W. Bush
George W. Bush
Nenah Cherry
Nenah Cherry

Laird C.

Spouse and caregiver
"It's a very, very scary situation to go through ... for the patient and for loved ones."
Read Laird's Story

Heather F.

Montgomery Country, MD
"Do not doubt yourself, but mostly, do not give up hope."
Read Heather's Story
Musician Bill Chinnock
Author Jordan Fisher Smith

Phil G.

Leelanau County, MI
"I’m finally starting to feel like myself again."
Read Phil's Story
Brenton Tyler Hoffman
Brenton Tyler Hoffman
Reality TV star Irene McGee
Author Eric Karlan
UFC fighter Jim Miller
Pres. Toomas Hendrik Ilves
Voice Contestant Ryan Quinn
Gary Player
Kari M.

Kari M.

Sonoma County, CA
"Lyme is life-changing, pain, pain, and more pain."
Read Kari's Story
Tennis pro Samantha Stosur
Singer-songwriter Jesse Ruben

Tory C.

Sonoma County, CA
"I will fight this disease and I will get my life back! "
Read Tory's Story
Tessa Wallace
Tessa Wallace

Shelby A.

Butte County, CA
"My hope is that one day Lyme disease will be treated quickly and correctly…"
Read Shelby's Story

Shymala H.

Contra Costa County, CA
"You are your own medical advocate ... Do NOT give up."
Read Shymala's Story

Robert Buelteman

San Mateo County, CA
"I knew something was very wrong."
Read Robert's Story
Anwar Hadid
HS Tennis Star Camryn C.
Courtesy of Independent Sports News
Olympian Kristen Sweetland

Sarah H.

Williamson County, TN
"I had no idea the tests were so inaccurate."
Read Sarah's Story

Andrew G.

Solano County, CA
"I believe my son, Andrew, was killed by Lyme."
Read Andrew's Story

Laure W.

San Mateo County, CA
"I felt like I lost my life for almost two years..."
Read Laure's Story
Kathleen O.
Kathleen O.
Fontayne F.
Fontayne F.
Louis S

Louis S.

San Mateo County, CA
"My mom says she remembers the day my personality came back."
Read Louis's Story