Rock, R&B, and soul musician
Lead vocalist, Hall & Oates
Infected: 2000s (bit many times)
Diagnosed: 2006
Current health: Sometimes it doesn’t affect me at all, but then it comes back in phases
People don’t understand. [Lyme disease] is serious stuff. -Daryl Hall
The rock star talks about his experience and the many misconceptions about Lyme in this interview on Fox News LIVE.
Photo courtesy of The Telegraph
Video courtesy of Fox TV
Este cara canta muito bem suas canções e melodia são muito boa.
Chad, I have read that long term intravenous antibiotics is not effective for Lyme. There was a site that described this treatment and hydro peroxide injection as quackery, among many others. There are a lot of opportunistic MDs. Be careful.
I am writing this letter with great hope. My wife Rena, 46 years old, has been diagnosed Neuroborreliosis. Neuroborreliosis is a disorder of the central nervous system caused by infection with a spirochete of the genus Borrelia, and is a form of neurological Lyme disease. Rena was a very active woman. She enjoyed going to the gym, camping, and loved to dance — all of which, at this point, she can no longer do as she is now in a wheelchair. We have been to many doctors over the last three years that have treated her several times for Lyme with Doxycycline and IV Rocephin, which all have failed. Currently, her symptoms are memory loss, tremors of head and extremities, neuropathy, numbness in arms and legs, no use of legs in a wheelchair, seizures, chronic fatigue, chronic pain, insomnia, and Renal Failure Stage 3b, and that’s just to name a few.
We have now found a doctor in Washington DC that specializes in Neuroborreliosis, who has informed us that she is in urgent need of treatment which consists of an aggressive form of IV antibiotic treatment over a 9 – 12 month period. The doctors have informed us that if she does not receive this treatment, the disease will lead to one of the following: ALS, MS, Alzheimer’s, Parkinson’s, Dementia, or death. However, the IV treatment is not covered under any type of insurance and the cost is astronomical. For treatment from 9 months to 1 year, the cost is an estimated $46,000.
We have wonderful friends that have set up fundraisers for us which we are grateful for, but it’s just a drop in the bucket. I am writing this in extreme need of financial help. I have tried all possible ways to arrange the money required for her treatment but the amount is beyond my reach, as Rena has not worked in 2 years. Her condition is worsening day by day. Your kind support can save my wife. Before she got sick, we had planned on purchasing land and build a house. With this huge bill looming over us, that is not possible. We are renting an old farmhouse that is not handicap friendly. Please help me get my beautiful bride and my kid’s mother back. Your prompt and positive support is appreciated. My contact information is below.
Thank you for your time and consideration.
Sincerely,
Chad Phillips
Chad, we are very sorry to hear of your wife Rena’s condition and hope that she can get the treatment she needs. Unfortunately, Bay Area Lyme is devoted to funding scientific research into new treatments and diagnostics (we are hoping to accelerate the path to a more effective cure for this insipid disease!) and not able to support individual cases.
You may want to consider reaching out to the following organizations which do offer financial support for patients with Lyme:
– Prescription Hope
– Good Rx
– Needy Meds
– The Glass Ball Foundation
– Clinic of Angels
– Hand In Hand for Lyme
We wish you and Rena the very best.
You might try Dr. Horowitz in Hyde Park, NY or Dr. Phillips in Wilton, CT. I’ve been recovering from 3rd stage Neuroborreliosis with Babesia, Bartonella and Mycoplasma co-infections and the anti-persister drug Dapsone has helped tremendously. Luckily it’s oral and covered by insurance. You should be able to get home IV via Infuserve in Florida to reduce costs. Please write your Senators every 6 months with an update if you can manage it or better yet, go in to their offices. Until we can get large-scale support, it’s going to be hard for everyone.
Oh, one other thought: if you’re desperate enough, you might look into which states in New England have Lyme laws and what those laws say because I know that some of them have mandated insurance coverage for Lyme. Visiting a doctor in a state that looks like it has a good mandate would give you a better idea of what is covered.