Each of our Lyme Disease Biobank (LDB) collection sites is unique in terms of location, the number and types of people and patients they see with tick-borne diseases, and the structure of their medical practice. We have sites in family practice, at urgent care centers, in community settings, and at academic medical centers. However, these sites all have one thing in common: They have experience treating patients with Lyme and tick-borne diseases and are partnering with LDB to find answers about these complex infections. Current collection sites are listed below with information on the types of samples they are collecting and how to connect to staff that can answer your questions about donating a sample. There is no cost to families or patients donating blood, urine, or tissue.
This Site Collects Blood and Urine from People with Chronic/Persistent Lyme:
Gordon Medical Associates (chronic/persistent)
Montecito Plaza
361 Third Street, Suite J
San Rafael, CA 94901
PI: Eric Gordon, MD
For more information about donating a sample at GMA, click here.
These Sites Collect Blood and Urine from People with Acute (early) Lyme:
NEW YORK
East Hampton Family Medicine (acute)
200 Pantigo Place, Suite I
East Hampton, NY
PI: George Dempsey, MD
Make an appointment by calling 631.324.9200 or learn more here
WISCONSIN
Marshfield Clinic Research Institute (acute)
Locations: Eau Claire, Lake Hallie, Marshfield, Minocqua, Stetin, Wausau, Weston
PI: Anna Schotthoefer, PhD
Make an appointment by calling 715.389.5738
Sites that Have Collected Samples in the Past and Are Now Closed
Carbon Health
Bay Area, CA
PI: Caesar Djavaherian, MD
Massachusetts General Hospital
Boston, MA
PIs: John Branda, MD, and Jacob Lemieux, MD, DPhil
Osteopathic Medical Associates of San Diego (chronic/persistent)
San Diego, CA
PI: Michael Kurisu, DO
Vineyard Center for Clinical Research
Vineyard Haven, MA
PI: Lena Prisco, PhD
Tissue Donation
Donating tissue from an upcoming surgery or post-mortem donation is not location dependent. You can plan to donate tissue from anywhere in the continental US. For more information visit NDRI’s Lyme registration page, watch the explanatory video below, or call 800-222-NDRI (6374), option 5. If the donation may occur within a week or you need immediate assistance, please call the number above (staff are available 24/7/365).
Hear from LDB Principal Investigator, Liz Horn, PhD, MBI, as she explains the tissue donation process:
Hear from donor, Meghan Bradshaw, a Lyme Disease Patient Advocate discussing her commitment to being a living donor for the Lyme Disease Biobank:
To read more about the LDB Tissue Collection Program, click here.
We would like to recognize and thank the Steven & Alexandra Cohen Foundation, the LaureL STEM Fund, an anonymous donor, and the 2014 & 2018 LymeAid Fund-a-Need supporters who have contributed significantly to our Lyme Disease Biobank.
We are grateful to the participants who volunteered and donated samples.