San Mateo County, CA
As the primary caregiver for husband Scott and daughters Bronte and Isabel, all three of whom suffer from Lyme disease, Camille has suffered through the many symptoms and trials of Lyme disease for more than 18 years. She has a great appreciation for the frustrations of those fighting this little understood disease and has recently started sharing her family’s experiences via a new blog, “Lymefamily.com“. Read more about her family’s story there.
“There are countless difficulties in this disease, but one of the hardest is the comment I hear weekly in my household, “I feel like I’m dying inside.” Lyme sufferers are all different… In our family each case is different in that my husband has been affected neurologically, but all have severe joint pain, fogginess, stomach issues, and more. The anxiety is one of the worst aspects of this relentless disease, and again because people can’t see it, it’s so very hard for them to understand, which makes it even worse for the person suffering… Our dream is that by sharing our story no one else has to endure the pain and suffering our family has had to endure for all of these years! -Camille A.
Here, Camille shares a poem that she has dedicated to all those suffering from Lyme or other tick-borne co-infections:
To the many faces we have met, in dealing with this tragic lonely illness.
Let there be light to brighten your days, even when it’s bleak, and you’re fading away.
To the many of you suffering, where silence is heard, the weeping in agony, the power in your words.
Like patterns of cloth sewn together, so are our stories we’ve experienced and weathered.
For the moments you feel all alone, remember you’re not fighting this on your own.
For the hardships and challenges each of us has faced. Let it bring hope, inspiration to find a cure with grace.
To all of you both young and old. Our thread is as one, the truth WILL unfold.
The courage I’ve observed when put to shame, inspires and gives me much needed strength.
The years of sickness have taken its toll, so try not let it penetrate our soul.
Each of us has a narrative all our own, swirling with vividness, and ready to be known.
For the colors of our stories are each unique, and will hopefully be what help people BELIEVE.
For the days that are dark and you feel quite broken, stay strong, and have faith that a movement has awoken.
Each of us suffering makes the patterns distinct, rich with complexity THE DISEASE WE WILL BEAT!