Ticks and Lyme disease are far too common and not at all discriminating. There are over 400,000 new cases of Lyme disease each year in the US and more than half a million Americans suffering from long-term or late-stage Lyme disease. Some are fortunate to be diagnosed and treated early, but for some the path to a cure is long and challenging.  Here we share some powerful stories of resilience and hope in the face of this debilitating and perplexing disease.

Are you interested in sharing your story? We’d like to hear from you.

Laura H.

Shasta County, CA
""I am doing ok.""
Read Laura's Story
Amanda K.
Adrienne N.
Chef Kirk Haworth
Ella B.
Davis B.

Karine B.

San Francisco County
"I did not accept that Lyme would be stronger than me."
Read Karine's Story
Whitfield W.
“Real Housewife” Amber Marchese
Gabe Magnotta
Erika S.

Michelle T.

Marin County, CA
"Are we gonna beat this? Absolutely. Can we find a cure? Absolutely."
Read Michelle's Story
Nelle F.
Crystal Harris
Rocker Dave Mustaine

Shona C.

San Francisco County, CA
"We can help each other take this day by day."
Read Shona's Story
Para-Olympian Mel Clarke
Eddie S.
Pastor Ramon H.
Tom J.
Amy W.
Mary-Margaret R.
Sierra R.
Melissa D.
George W. Bush
Adventurer Ray Mears

Alan B.

Middlesex County, MA
"At some point, we will all be liberated from this nightmare."
Read Alan's Story
US Track Star Perry Fields
Walter H.

Seth D.

Columbia County, NY
"Has anyone else had a similar experience?"
Read Seth's Story
UFC fighter Jim Miller

Dave Skidmore

Lehigh County, PA
"These days most people know someone with Lyme disease. That's a lot of someones."
Read Dave's Story
Christy Turlington
Gerrit van Zijll

Allie C.

Westchester County, NY
"It's time to make some noise."
Read Allie's Story
Senator Kay Hagan
Ally Hilfiger

Kris Newby

Santa Clara County, CA
"It is unhealthy for a society to use language that blames the victim."
Read Kris's Story
Evan G.

Robert Buelteman

San Mateo County, CA
"I knew something was very wrong."
Read Robert's Story
HS Tennis Star Camryn C.

Bella M.

Lee County, FL
"This is not easy. Life gets harder every day."
Read Bella's Story
Melissa M.

Mary Sue A.

Monterey County, CA
"I will do everything in my power to help prevent this disease!"
Read Mary's Story
Musician Bill Chinnock

Kayla D.

Harris County, TX
"It never occurred to me that something else could be going on."
Read Kayla's Story
Kris Kristofferson
Lisa N.
Grace W.
Tom Seaver

Triathlete Angela Naeth

British Columbia, Canada
"Treating lyme is like being on a roller coaster. "
Read Triathlete's Story
Calla J.
Painter John Bramblitt
Singer-songwriter Jesse Ruben

Elet Hall

Freerunner, Parkour Athlete, and American Ninja Warrior
"I just want to get my body to a point where I can do what I want to do."
Read Elet's Story

Dana Parish

Singer Songwriter
"I had the CDC-recommended 21 days of Doxy... I fully believed I'd be okay."
Read Dana's Story
Jazz-Hip Hop Artist Pete Philly
Bella Hadid
Ink Master Geary Morrill
Olympian Kristen Sweetland
Singer-songwriter Jared Dylan
Runner Robby A.
Pop artist Sonali Argade
Nichola M.
RHONY star Ramona Singer
Ben Stiller
Richard Gere
Author Porochista Khakpour
Lindsay B.
Colin M.
Yolanda Foster
Enid H.
Alice Walker
Musician Elijah Blue Allman
Kelly Osbourne
Sarah M.
Writer David Michael Conner

Maisie M.

Washington, DC
"I am invisibly sick ... but I am at war with Lyme."
Read Maisie's Story
MiLB Player Jordan Yallen

Alix M.

Santa Clara County, CA
"Chronic Lyme is a living death"
Read Alix's Story

Camille A.

Spouse, mother, and caregiver
"The amount of suffering [from Lyme disease] is inexcusable!"
Read Camille's Story
Kathleen O.
Emily S.
Gregg K.
Marisol Thomas
Alex H.
Topeka Mayor Michelle de la Isla

Mary Kate Robertson

'Duck Dynasty' star
"I hope the seriousness of this disease will start to get out there."
Read Mary's Story
Singer-songwriter Ben Kyle
Legendary crooner José José
Cassie M.
Soccer star Karel Poborsky
Congressman Berkley Bedell
Pro Golfer Gary Player
Reality TV star Irene McGee
Olympian Christie Rampone

Bart Yasso

Competitive Racer & Running Legend
" I can do this. I can beat this thing."
Read Bart's Story
Karl B.

Andrew G.

Solano County, CA
"I believe my son, Andrew, was killed by Lyme."
Read Andrew's Story

Brandon W.

Albemarle County, VA
"I hope one day we can find a cure to this terrible disease."
Read Brandon's Story
Susan B.
News Anchor Gretchen Carlson
Avril Lavigne

Tracy M.

Los Angeles County, CA
"I want to share my story, spread awareness about Lyme and give hope to those in pain."
Read Tracy's Story
Sarah N.
Actress Karen Allen

Kari M.

Sonoma County, CA
"Lyme is life-changing, pain, pain, and more pain."
Read Kari's Story
Deanna T.
Justin Bieber

Susie M.

San Diego County, CA
"None of the physicians I saw put it together either."
Read Susie's Story

Tory C.

Sonoma County, CA
"I will fight this disease and I will get my life back! "
Read Tory's Story
Nikki K.
Actress Martine McCutcheon
Kyle Morton

Izabela B.

Bergen County, NJ
"Listen to your body! When you think something is wrong, it probably is."
Read Izabela's Story

Shymala H.

Contra Costa County, CA
"You are your own medical advocate ... Do NOT give up."
Read Shymala's Story

Rachel H.

Santa Clara County, CA
"I no longer see my health journey as a curse."
Read Rachel's Story

Esmé Weijun Wang

San Francisco County, CA
"I'm chronically ill and afraid of being lazy."
Read Esmé's Story
PGA Champion Jimmy Walker
Ryan H.
Nenah Cherry
Pres. Toomas Hendrik Ilves

Daryl Hall

Musician, Hall & Oates
"People don't understand. Lyme disease is serious stuff."
Read Daryl's Story

Mela L.

Siskiyou County, CA
"Hoping to help make the world a bit healthier!"
Read Mela's Story
Olivia S.
Breanna R.
Ruben Lee Sims

Phil G.

Leelanau County, MI
"I’m finally starting to feel like myself again."
Read Phil's Story

Lia G.

Alameda County, CA
"Lyme disease: it’s real, folks."
Read Lia's Story
Olivia G.
Motorcross Racer Jimmy Decotis
Voice Contestant Ryan Quinn

Kelly W.

Plumas County, CA
"The journey through Lyme disease is a long and painful experience."
Read Kelly's Story
Stephanie E.
Entrepreneur John Caudwell
Jane Alexander
Thaiadora D.
Competitive miler Drew Hunter

Jenn B.

Alameda County, CA
"I hope my struggle helps educate the public and enlighten medical professionals."
Read Jenn's Story
Elena Delle Donne
Tessa Wallace
Author Jordan Fisher Smith
Author Andrew McGuinness

Laure W.

San Mateo County, CA
"I felt like I lost my life for almost two years..."
Read Laure's Story
Jennifer Capriati
Lisa V.
Samantha P.
Debbie Gibson
HGTV designer Genevieve Gorder
Triathlete Mary Beth Ellis
Fontayne F.
USA Triathlete Peter Weaver
Danie V.
Wendy A.
NHL player Lukas Bengtsson

Briana B.

Butte County, CA
"I am ready to take back my life."
Read Briana's Story

Blair B.

Oconto County, Wisconsin
"Lyme disease changed my relationship with the outdoors"
Read Blair's Story
Claire E.

Shelby A.

Butte County, CA
"My hope is that one day Lyme disease will be treated quickly and correctly…"
Read Shelby's Story

David D.

Boundary County, ID
"I have been given a second chance at life."
Read David's Story
Outdoor explorer Lee Farmer
Jocelyne B.
Suzanne P.
Singer Songwriter Jesse Colin Young
Rebecca Wells
Comedian Akilah Hughes
Peter Sarsgaard

Brooke G.

New York, NY
"We get stronger by working together for greater health and wellness."
Read Brooke's Story
Tasha R.
Singer Marina Morgan

Christina C.

Alameda County, CA
"Many people know very little about Lyme. I'm going to change that."
Read Christina's Story
Artist Peter Williams
Boxer Mikkel Kessler
BBC Reporter Allan Little

Louis S.

San Mateo County, CA
"My mom says she remembers the day my personality came back."
Read Louis's Story
Anwar Hadid
Reporter Nicola Sommavilla
Tori Foles
Stephanie S.
Nancy D.

Kevin S.

Wake County, NC
"You are never beyond hope."
Read Kevin's Story
Kirstie Alley

Tommy F.

Middlesex County, MA
"I hope by sharing my story I can provide some insight into the daily life of this disease."
Read Tommy's Story
Kelsey W.
Actor/Producer Ariel Stein
Cassidy C.
Amy Tan

Natalie N.

Lee County, FL
"I'm 22 and living like a hermit... Lyme has taken so much from me."
Read Natalie's Story
Patrick P.

Matt Dawson

International Rugby star
"Ticks carry some really potent bacteria. Raising awareness is imperative.""
Read Matt's Story
Matthew G.
Dancer Brendan Saye

Neil Spector, MD

Oncologist, Author, and Lyme patient
"I was in the active peak of my life, but it was like I was an old man."
Read Neil's Story
PGA Golfer Tim Simpson


"People need to know. Lyme is the fastest-growing infectious disease in the world!"
Read KÊTA's Story
Scott A.
Marla Maples
Netflix star Talia Jackson

Angeli Vanlaanen

Professional Freeskiier
"My story of going years undiagnosed is all too common."
Read Angeli's Story
Pete Seeger
Erin R.

Emily L.

Norfolk County, MA
"Just because I am sick, doesn't mean I have to live a sick life."
Read Emily's Story
Hannah O.
Kathleen Hanna
Tennis pro Samantha Stosur

Ari S.

San Mateo County, CA
"Don’t try to do it on your own. It’s too hard. Get help."
Read Ari's Story

Sarah H.

Williamson County, TN
"I had no idea the tests were so inaccurate."
Read Sarah's Story

Marjorie H.

Morris County, NJ
"Seeking answers and advocating for ourselves and our families is important!"
Read Marjorie's Story
Author Eric Karlan

Michelle M.

Suffolk County, NY
"If I was ever going to get better, I had to be my own advocate."
Read Michelle's Story
Ashley Olsen
Jamie-Lynn Sigler
Sharon W.
Shania Twain

Sarah D.

County Carlow, Ireland
"There is light at the end of the tunnel."
Read Sarah's Story
Erin Walker

Sharane D.

Maricopa County, AZ
"I am going to do what I can to make sure no one else has to go through my nightmare."
Read Sharane's Story
Dr. Kristin Honey
Parker Posey

Heather F.

Montgomery Country, MD
"Do not doubt yourself, but mostly, do not give up hope."
Read Heather's Story
Chloe L.

Katherine H.

Sonoma County, CA
"The miracle happened when we were at the darkest point in Lyme disease."
Read Katherine's Story

Jonathan L.

Bernalillo County, NM
"Chronic Lyme is like stepping through the looking glass straight into Hell."
Read Jonathan's Story
James D.
Tara C.
Author Holly Chamelli
Brenton Tyler Hoffman
Brooke Landau
Nicole K.
NHL player-coach Kirk Muller

Trae V.

San Mateo County, CA
"Everyone knows somebody with Lyme — they just don’t know it yet."
Read Trae's Story