Growing Together Through Strategic Partnership

Bay Area Lyme and Project Lyme partner for the 2018 Gala

Bay Area Lyme New Chapters Series

 

The natural law of things is that when there is a vacuum energy moves into that space to fill it up. The vacuum is then no longer a space or hole, it’s a place or an entity where energies from different locations come together and create new things.

So it is with the Lyme disease community: there are multiple nonprofit organizations across the country that have been founded to tackle complex issues in Lyme and tick-borne diseases, and as a result many people with Lyme—and their families—have stepped up to fill a vacuum and taken matters into their own hands.

Dr Neil Spector
Dr. Neil Spector presenting at the 2018 NYC Gala benefitting Project Lyme and Bay Area Lyme Foundation

In the Lyme disease ecosphere—just as in life—we are stronger, more effective, and more impactful when we join together and pull in the same direction, rather than fragmenting our efforts and competing for resources and attention. This was the simple conclusion that Bay Area Lyme Foundation and Project Lyme came to back in 2018, and the two foundations’ partnership has subsequently gone from strength to strength.

“Bay Area Lyme was looking for an East Coast partner to extend our organizational profile and boost our fundraising footprint in a collaborative spirit,” comments Linda Giampa, executive director of Bay Area Lyme Foundation. “We had a solid network back east and had conducted a number of speaker events in New York City. We thought that joining forces with the right East Coast group could provide us with important connections, amplify our fundraising, and raise our profile nationally.”

Ticktective: A “Professional Persuader” Shares His Bold Discoveries as a Journalist, Author, and Lyme Patient Advocate

Ticktective Podcasts

Ross Douthat

Ross Douthat, New York Times columnist, political analyst and author, shares his findings on the state of Lyme research, public perception, and his personal experience with tick-borne infections. Previously he was a senior editor of The Atlantic. He is the film critic for National Review, and he co-founded the New York Times’s weekly op-ed podcast, The Argument. Ross’s most recent book is about his experience with Lyme disease and is called “The Deep Places: A Memoir of Illness and Discovery”. Ticktective Video and Podcast Editor: Kiva Schweig.

Ticktective: A Straight-Forward Explanation of the Complications with Lyme Diagnostics and a Potential New Direct Detection Test

Ticktective Podcasts

Brandon Jutras, PhD

Dr. Brandon Jutras is an assistant professor in the Department of Biochemistry at Virginia Tech whose recent diagnostic project on Borrelia’s peptidoglycans was selected for a Bay Area Lyme Foundation 2021 Emerging Leader Award. With over 25 peer reviewed publications in many of science’s top journals, Dr. Jutras is an expert in explaining existing and potential Lyme diagnostics. Ticktective Video and Podcast Editor: Kiva Schweig.

Fueling the Research Engine

Lyme Disease Biobank

BAL Leading the Way Series

 

How a chance meeting and the harnessing of big data led to a research initiative that’s finding answers in Lyme and tick-borne disease

Many different groups comprise the Lyme disease community including patients, their families, healthcare providers, researchers and nonprofit organizations. These nonprofit organizations and foundations may differ in size, structure, fiscal basis, focus and approach, but in one important aspect they are united: the search for answers.

This search for answers in the realm of Lyme and tick-borne diseases has served as a unifying driver, even when dissent and controversy has sometimes fragmented the Lyme community.  And despite what seems to be a constant uphill battle for recognition and legitimacy of Lyme and tick-borne infections, many believe that we’re on the brink of major breakthroughs to help patients and doctors unlock the medical mysteries that make these infectious diseases so confounding. Two people cautiously optimistic about where we are in the search for answers about Lyme are Liz Horn, PhD, MBI, Principal Investigator, Lyme Disease Biobank, and Lorraine Johnson, JD, MBA, Chief Executive Officer, LymeDisease.org and Principal Investigator MyLymeData.

Ticktective: Why Classic Medicine Does Not Work for Complex Chronic Illness Such as Alzheimer’s Disease and Tick-Borne Disease

Ticktective Podcasts

Dale Bredesen, MD

Dale Bredesen, MD is the author of the New York Times‘ bestseller, “The End of Alzheimer’s” as well as “The First Survivors of Alzheimer’s”. He has held faculty positions at UCSF, UCLA, and UCSD. Dr. Bredesen directed the Program on Aging at the Burnham Institute before joining the Buck Institute in 1998 as the founding President and CEO. Dr. Bredesen has published many scientific journal articles and holds over thirty patents. NOTE: there were technical difficulties with the video recording so the video does not switch between interviewer and interviewee. Ticktective Video and Podcast Editor: Kiva Schweig.

The Complex Science and Politics of Chronic Diseases: Autoimmune, Tick-Borne, Multiple Sclerosis, Fibromyalgia and More

Ticktective Podcasts

Steven Phillips, MD

Steven Phillips, MD is a Yale-trained physician and co-author of the book, “Chronic: The Hidden Cause of the Autoimmune Pandemic”. He has treated over 20,000 patients from over 20 countries. Dr. Phillips is well-published in peer-reviewed medical literature such as the Lancet and has been featured in popular media such as the NY Times, the Huffington Post, Dr. Oz, Fox’s Lyme and Reason, CBS, Revolution Health Radio with Chris Kresser, Dr. Been, and The Doctors. Ticktective Video and Podcast Editor: Kiva Schweig.

Insights on Illness with Meghan O’ Rourke, Author of “The Invisible Kingdom: Reimagining Chronic Illness”

Ticktective Podcasts

Meghan O’ Rourke

Meghan O’ Rourke is the editor of the Yale Review as well as the author of articles in Scientific American, the New York Times, the New Yorker, the Wall Street Journal, Slate and many poetry publications. She is the author of several books including her newly released book,The Invisible Kingdom: Reimagining Chronic Illness. Meghan is the winner of many awards and prizes including the Guggenheim Award for General Nonfiction. Meghan has recently been featured on NPR’s Fresh Air, the Ezra Klein Show and Good Morning America. Ticktective Video and Podcast Editor: Kiva Schweig.

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A Broader Definition of Health through Ancestral Learning, Diet and Better Understanding of the Human Body

Ticktective Podcasts

Chris Kresser, M.S., L.Ac.

Chris Kresser, M.S., L.Ac., is a renowned expert, leading clinician, and top educator in the fields of functional medicine and ancestral health. He is the author of the New York Times bestselling book, “The Paleo Cure” as well as the book, “Unconventional Medicine“. Chris is the co-founder and Educational Director of the California Center for Functional Medicine and the founder of the The Kresser Institute. Ticktective Video and Podcast Editor: Kiva Schweig.

The Future of Lyme Diagnostics: How Wearable Technology May Lead to Fast, Accurate and Reliable Lyme Disease Detection

Mike Snyder PhD Wearables Project

BAL Leading the Way Series

 

Remember when we used to watch Captain Kirk talk into his chirping communicator and order Scotty to beam him up? And what about that handy medical scanner the size of a pack of cards that Dr. McCoy waved around to assess and diagnose his patients in the starship’s sick bay? We may now all have smartphones to stay in constant touch with each other, but outside of a state-of-the-art hospital with multi-million-dollar scanners and MRI machines, we are still some years away from the Star Fleet’s instantaneous medical technology, right? 

Wrong.

Advances in our ability to gather real-time information on the human body are poised to revolutionize not just how we diagnose diseases, but make dramatic, life-altering, positive impacts on the critical timeline for diagnosis and treatment by detecting a disease event before symptoms occur. And Bay Area Lyme is leading the way by investing in research that will further illuminate our understanding of how—in real time—a Lyme infection impacts the human body through the data collected by wearable technologies.

What To Do If You Find a Tick

Ticktective Podcasts

Dan Wolff, aka "Tick Man Dan"

Dan Wolff “Tick Man Dan”, the founder and president of TickEase tweezers, the only patented, CDC-compliant, two-sided tweezer created expressly for removal of embedded ticks from people and pets.. He discusses his invention, what to do when you find a tick, ecology of ticks, and how Tony Fauci ended up at his bar mitzvah. Ticktective Video and Podcast Editor: Kiva Schweig.