Bay Area Lyme Foundation Sponsors Massachusetts General Hospital Forum to Address Challenges of Lyme Disease
Researchers consider issues of persistence, and cardiac and neurological manifestations of Lyme disease, as well as the challenges of other emerging tick-borne diseases
Boston, MA, June 13, 2016 – Massachusetts General Hospital convened a national scientific conference, “Lyme Disease and Tick-Borne Illnesses: Diagnostics, Emerging Pathogens and Avenues for New Research,” was convened at Massachusetts General Hospital to educate and inspirecollaboration toward a greater understanding of the of tick-borne diseases and how research should be focused. This conference, which was attended by academia, industry, and government, was supported by Bay Area Lyme Foundation. Lyme disease infects more than 329,000 people each year in the U.S., and there is currently no sufficiently reliable Lyme diagnostic test and there is no universally effective treatment for post-treatment Lyme disease.
He shares some important observations on the relationship between our pets and their people, especially in the context of vector-borne pathogens like Lyme disease.
Pets are our companions. They share our lives, our homes and our family time. We often share the mutual love of activities such as hiking or simply playing fetch in the backyard. While companionship is clearly why we have pets, our bond with them is often far greater than we appreciate — we share the same environment and more often than not, the same health concerns. At the top of this list are several vector-borne diseases.
On May 27th, Lia Gaertner, a member of our science committee, and her husband, Sunjya Schweig, MD, discussed tick-borne disease prevention and Lyme disease treatments on KTVU Fox News in San Francisco. Many thanks to Lia and Sunjya for their valuable help with our awareness and education programs.
Bay Area author and noted documentary filmmaker Eliza Hemenway recently turned her journalistic eye toward her own family to document a notably personal and tryingly poignant story about her family’s trials with Lyme disease and the baffling enigma that surrounds the illness and its treatment. Her daughter, Katherine, just seven years old when infected, suffered for years before successfully being diagnosed. And even after diagnosis, the family struggled to get the care they needed.
“I am a Bay Area mother who wrote Paris in Oakland to be a story of hope and encouragement to the Lyme community, something I desperately needed when my daughter was first diagnosed and I was trying to understand the controversies and confusion surrounding Lyme.
May is Lyme Awareness month. And it is indeed time to be aware. Thanks to El Niño, it’s a wetter Spring than we’ve had in several years. That means we have lots of green grass, damp leaf litter, and overgrown trails and paths. It also means the ticks are out. And early spring means nymph season — these nymphs are young ticks, not much bigger than a poppy seed … the kind that are easy to miss with a quick glance.
The good news is that ticks can’t fly, jump, or even run. But they do “quest” — they hang out on leaves, blades of grass, and branches, tiny legs poised to grab onto a warm body passing by. Ticks need to feed in order to progress to the next life stage and perching ready to grab a free ride (and meal!) on an unwitting passerby is how they ensure their survival.
When hiking or biking in the woods, if you keep to the center of the trail and avoid bushwhacking and brushing up against high grasses or other vegetation, your risk of picking up a parasitic passenger is pretty low. Once you leave the trail for a pit stop, however, the risk rises exponentially. Ticks are carried by deer and other small mammals that also like to use the trails so the highest concentration of ticks is often close to trails.
California Strains of Lyme Bacteria May Survive Antibiotic Treatment, According to New Study
This new study funded by Bay Area Lyme Foundation identifies 20 FDA-approved compounds that are more effective in inhibiting persistent Lyme bacteria than standard treatment
Silicon Valley, CA, April 6, 2016—A laboratory study published today, funded by the Bay Area Lyme Foundation, is the first study to demonstrate that strains of Lyme bacteria present in California ticks are able to form persister bacteria, which do not respond well to treatment.The study is also the first to identify FDA-approved therapies that may be more effective in inhibiting these specific strains of persister bacteria in the lab than doxycycline, the most commonly prescribed treatment for Lyme disease. The study was conducted by Stanford School of Medicine researchers and published in the Open Access publication Drug Design, Development and Therapy. View full study here:http://www.dovepress.com/articles.php?article_id=26319
On March 2nd, Bay Area Lyme again hosted another of its Speaker Series events. These popular salon-style events allow community members to come together in an intimate forum to share stories and hear directly from experts in the field.
Dr. Ben Beard, PhD, Chief Bacterial Diseases Branch at the CDC, visited with Bay Area Lyme and invited guests as part of the foundation’s ongoing speaker series. This donor-sponsored forum brings together researchers and other experts in an intimate forum for topical discussions with community members. Past events have included Emerging Leader Award winners, clinicians, and patient advocates.
The next event, on Wednesday, March 2, will feature Dr. Christine Green, Director of Education for ILADS, and Allie Cashel, author of Suffering the Silence: Chronic Lyme Disease in an Age of Denial.
As Chief of the CDC’s Bacterial Diseases Branch, Division of Vector-Borne Diseases in Fort Collins, Colorado, Dr. Beard coordinates CDC’s programs on Lyme disease, plague, and tularemia. His scientific interests include public health and the biology, ecology, and genetics of insect-borne diseases and vectors. More recently, he has been extensively involved in the CDC’s work to understand and mitigate the potential impact of climate variability and change on infectious disease ecology. He shared the CDC’s concerns about the expanding disease burden and distribution of Lyme and affirmed the importance of attracting new research interest and efforts focused on Lyme disease and other tick-borne infections.
Free Tick Testing Initiative Is First In The Nation and Aims to Map Tick-borne Diseases Across the U.S. Through Crowd-sourcing
Silicon Valley, CA, February 16, 2016 — Bay Area Lyme Foundation, a leading nonprofit funder of innovative Lyme disease research in the US, today announced that the Foundation is the first to offer free tick testing for residents of the U.S. Testing is available through a partnership with Nate Nieto, PhD, Assistant Professor, Department of Biological Sciences, Northern Arizona University and his lab. Bay Area Lyme Foundation hopes to use this crowd-sourced data as a vehicle for gaining a greater understanding of the geography of tick-borne diseases in the U.S. If successful in accumulating data, it will be the first crowd-sourced study of its kind.
Theresa Wiles is a PSYCH-K® facilitator in Northern California. Her work involves helping patients to leverage their subconscious beliefs for positive outcomes. “Changing our thought patterns changes our ‘Field’ and we begin to create the reality we envision for ourselves. We start to act more intuitively, we experience more serendipity in our lives. The Universe and our subconscious mind starts assisting us in creating the life we envision for ourselves.”
Here, in this guest post, she shares a perspective about how these techniques might assist in the healing of long-term Lyme disease.