Suffering the Silence and Finding a Voice

Allie CashelBy Allie Cashel

The following is a guest post by a young author and Lyme patient who has turned her experience into a catalyst to help others find their voice and break the silence around long-term struggles with Lyme disease and other chronic illnesses. You can read more about Allie in our Faces of Lyme section and on her own website, sufferingthesilence.com.

Allie has a new book due out in early September, Suffering the Silence: Chronic Lyme Disease in an Age of Denial. Bay Area Lyme Foundation will be co-hosting a reading and book signing at Books Inc. in Mountainview, CA on Tuesday, September 15th at 7:00pm.  Come join us at the event and meet this engaging young speaker!

Everyone knew about Lyme disease in the town where I grew up. “Easy to diagnose and simple to treat,” people said. “As long as you get the medicine in you, you’ll be fine.” As a kid, I was always hearing stories about someone who had recently been diagnosed with Lyme – parents, cousins, siblings, pets – and in almost every case, the stories I heard were short.

Are the Deer to Blame?

deer_300Blacklegged ticks, both the Western and Eastern varieties, are often known as “deer ticks” … Does that mean deer are to blame for the spread of Lyme disease?

Perhaps surprisingly, the answer is not obvious. While deer are a common host animal for the ticks (and can carry as many as 1000 ticks per animal!), they do not support the Lyme-causing spirochete (Borrelia burgdorferi bacteria). Ticks can feed, reside, and reproduce on deer but need to come into contact with the bacteria via another host before biting a human to spread Lyme disease. So, while there is a correlation between human Lyme cases and corresponding deer populations, it has more to do with the deer enabling the expansion of the tick population than the transmission of the bacteria. Mice and ground squirrels, both of which are common hosts for both ticks and the bacteria, are much more likely to bring infected ticks into human contact (…just in case you were looking for another reason to avoid rodents!)

There are a lot of intriguing facts and misperceptions about which animals do or don’t contribute to Lyme risk. And more research is being done to evaluate exactly which layers of the food chain have the greatest impact in the proliferation or containment of the ticks and the bacteria. Here’s what we know now…

It’s Tick Season … Keeping You and Your Pet Safe from Lyme Disease

Dr William St Lawrence_headshotGuest blog by Dr. William St. Lawrence, Village Square Veterinarian, Portola Valley Village Square

May is Lyme Awareness month but it is only the beginning of peak season in the Bay Area for the troublesome nymphal blacklegged ticks that can carry Lyme disease. As we come to the final days of the month, it is not time to let down your guard.

In this guest post, popular local veterinarian Dr. William St. Lawrence shares some important facts about keeping you and your pets safe for the rest of this spring and early summer.

Spreading the Word About Ticks in California

Jo Ellis, Director of Education Outreach at Bay Area Lyme Foundation and Dan Salkeld, PhD, a foundation research scientist, lecturer at the Stanford Woods Institute for the Environment, and Professor at Colorado State University, recently attended the Association of Outdoor and Environmental Educators (AEOE) conference in Marin County, CA to update naturalists and outdoor educators on Lyme disease and tick-bite prevention.

IMG_9088_640Here, Bay Area Lyme research scientist Dan Salkeld shows California naturalists how to drag for ticks at the Association for Environmental and Outdoor Educators annual conference.

I Just Discovered a Tick Bite, Now What?

iPhoneTextI just found a tick on [Sam]. I pulled it out and it was still alive and I wonder if I should be worried about Lyme. He said it had been bothering him for a few days now. Yikes! Have you had this happen before? Should I take him to the doctor? Do you think he might have Lyme disease???

A few weeks ago at 9:30 pm one evening, I received the above text from a good friend who had discovered a tick on her eight-year old son’s neck just under his hairline and wasn’t sure if she should be rushing straight to the ER. The area around the bite had become quite red and irritated and the tick appeared to be engorged, though having never encountered a tick before and having hastily flushed the tick down the toilet after removing it (“nasty critter!”), my friend also could not be 100% certain it was in fact a “deer tick” (common name for the Lyme-carrying western blacklegged tick). Worse still, we had several mutual connections who had been recently diagnosed with Lyme after encountering infected ticks in the hills and woods of the Santa Cruz mountains, here on the San Francisco peninsula, so the fear was genuine.

Fight Lyme Disease. Spread the Word!!

Sarah Herbert_Backpack_250Recently we received this letter from a young Lyme sufferer who took the initiative and leveraged her frustration from battling Lyme disease and the hope that her recent diagnosis has now brought to create this powerful educational video about the disease and how to stay safe.

Sarah H. was diagnosed with Lyme in 2014 after battling the symptoms for more than 20 years without an accurate diagnosis. You can read more about her personal Lyme story here on our Faces of Lyme feature and see another of her prevention videos.

Tick Encounter–Learning Through Experience

Marin Cty Outdoor_George Stratman_312b_DSC_0584GUEST BLOG: The following story about a recent tick encounter was shared by George Stratman, Principal of the Marin County Outdoor School at Walker Creek Ranch in Petaluma, CA.

As part of Bay Area Lyme Foundation’s educational outreach, staff visit and work with school teachers, camp counselors, and administrators throughout the Bay Area, providing instructional materials and tools and support for program development.

For more information about our outreach activities or to learn more about how we can partner with your organization, contact Jo@bayarealyme.org.

Every week, a new group of approximately 180-200 fifth- or sixth-grade students arrives at Walker Creek Ranch for a week of what is most commonly known as “outdoor education” – a highlight of the fifth and sixth-grade years for many students and their teachers. Walker Creek Ranch, Marin County’s Outdoor School, is in a stunning setting, surrounded by hills rolling gently out toward the Pacific Ocean, and boasting woodlands, ponds, and an abundance of wildlife. The school serves over 5,000 California school children each year with a dedicated team of naturalists, teachers, and support staff, all of whom put the health and safety of our student visitors as the top priority.

Prompt & Proper Tick Removal Key to Preventing Lyme Disease

TickHow long does it take for a tick bite to cause infection? If I remove the tick within 24 hours, am I safe? What about 72 hours? What if I just found the tick but don’t know when it first attached? These questions and many more come up all the time, particularly here in California where tick and Lyme disease awareness are just beginning to grow.

Standard protocol has been to consider the risk quite low if the tick is removed within a 24-72 hour window. However, in this study by the California Lyme Disease Association and the Sonoma Mosquito and Vector Control District, the authors point out the importance of early and proper removal of any and all ticks. Bacterial transmission has occurred in as little as 6 hours.  

2014: A Year in Review

It is that time of year when we reflect and take stock of all that’s happened over the past 12 months – the highs and the highlights and what it portends for the year ahead. As we quickly approach the close of 2014, we are proud of the progress that has been made and grateful to all those who helped create greater awareness, understanding, and discovery around Lyme disease, its agents, and its progression. It has been a year of collaboration and innovation across the research field with promising developments for new treatments and diagnostics