Bay Area Lyme Foundation Sponsors Massachusetts General Hospital Forum to Address Challenges of Lyme Disease
Researchers consider issues of persistence, and cardiac and neurological manifestations of Lyme disease, as well as the challenges of other emerging tick-borne diseases
Boston, MA, June 13, 2016 – Massachusetts General Hospital convened a national scientific conference, “Lyme Disease and Tick-Borne Illnesses: Diagnostics, Emerging Pathogens and Avenues for New Research,” was convened at Massachusetts General Hospital to educate and inspirecollaboration toward a greater understanding of the of tick-borne diseases and how research should be focused. This conference, which was attended by academia, industry, and government, was supported by Bay Area Lyme Foundation. Lyme disease infects more than 329,000 people each year in the U.S., and there is currently no sufficiently reliable Lyme diagnostic test and there is no universally effective treatment for post-treatment Lyme disease.
He shares some important observations on the relationship between our pets and their people, especially in the context of vector-borne pathogens like Lyme disease.
Pets are our companions. They share our lives, our homes and our family time. We often share the mutual love of activities such as hiking or simply playing fetch in the backyard. While companionship is clearly why we have pets, our bond with them is often far greater than we appreciate — we share the same environment and more often than not, the same health concerns. At the top of this list are several vector-borne diseases.
Bay Area author and noted documentary filmmaker Eliza Hemenway recently turned her journalistic eye toward her own family to document a notably personal and tryingly poignant story about her family’s trials with Lyme disease and the baffling enigma that surrounds the illness and its treatment. Her daughter, Katherine, just seven years old when infected, suffered for years before successfully being diagnosed. And even after diagnosis, the family struggled to get the care they needed.
“I am a Bay Area mother who wrote Paris in Oakland to be a story of hope and encouragement to the Lyme community, something I desperately needed when my daughter was first diagnosed and I was trying to understand the controversies and confusion surrounding Lyme.
Experts Hack for Lyme Disease Solutions in Boston and Berkeley
Bay Area Lyme Foundation Supports the First Hackathon for Lyme Disease to Inspire Innovation
Silicon Valley, CA, April 18, 2016— To inspire innovation to help solve the challenges of Lyme disease, Bay Area Lyme Foundation, collaborating with the Spaulding Rehabilitation Network’s Dean Center for Tick Borne Illness, Harvard Medical School Department of Physical Medicine and Rehabilitation, MIT Hacking Medicine, University of California, Berkeley, and the Veterans Affairs Center for Innovation, is supporting Lyme Innovation, the first ever Hackathon for Lyme disease, a potentially devastating condition newly infecting 329,000 people each year. Scientists, clinicians, researchers, entrepreneurs, and investors from both U.S. coasts participated in this innovative event, which kicked off this weekend, and will continue in Cambridge June 17 – 19, at the Microsoft Nerd Center.
On March 2nd, Bay Area Lyme again hosted another of its Speaker Series events. These popular salon-style events allow community members to come together in an intimate forum to share stories and hear directly from experts in the field.
Dr. Ben Beard, PhD, Chief Bacterial Diseases Branch at the CDC, visited with Bay Area Lyme and invited guests as part of the foundation’s ongoing speaker series. This donor-sponsored forum brings together researchers and other experts in an intimate forum for topical discussions with community members. Past events have included Emerging Leader Award winners, clinicians, and patient advocates.
The next event, on Wednesday, March 2, will feature Dr. Christine Green, Director of Education for ILADS, and Allie Cashel, author of Suffering the Silence: Chronic Lyme Disease in an Age of Denial.
As Chief of the CDC’s Bacterial Diseases Branch, Division of Vector-Borne Diseases in Fort Collins, Colorado, Dr. Beard coordinates CDC’s programs on Lyme disease, plague, and tularemia. His scientific interests include public health and the biology, ecology, and genetics of insect-borne diseases and vectors. More recently, he has been extensively involved in the CDC’s work to understand and mitigate the potential impact of climate variability and change on infectious disease ecology. He shared the CDC’s concerns about the expanding disease burden and distribution of Lyme and affirmed the importance of attracting new research interest and efforts focused on Lyme disease and other tick-borne infections.
Reflections from a Promising Dialogue at the AAAS Conference in Washington, DC, November 17-18
by Lia Gaertner, BAL Science Committee
Some weeks ago, two members of the Bay Area Lyme Foundation Science Committee, Wendy Adams and Lia Gaertner, attended a leadership symposium in Washington, DC, sponsored by the American Association for the Advancement of Science (AAAS) and entitled, “Innovations-X: Rising Above the Politics for Progress in Science.” The AAAS is the world’s largest general scientific society, with more than 125,000 individual and institutional members, and the publisher of Science magazine. Its mission is “to advance science, engineering, and innovation throughout the world for the benefit of all people.”At this event, there were three “wicked problems” discussed over two days: climate change, global/mobile health, and Lyme disease. This blog, written by Lia Gaertner, will focus only on the Lyme portion of the conference.
Foundation Supports More Researchers Nationwide andExpands Advisory Board to Include Cancer Researcher and Lyme Survivor Neil Spector, MD
Silicon Valley, CA — Bay Area Lyme Foundation, a leading nonprofit funder of innovative Lyme disease research in the US, today released its roster of 2015 research grant recipients. Collectively these researchers received $1.5 million from the Foundation for research related to Lyme disease, a growing epidemic with more than 329,000 reported new cases each year according to the CDC. The organization also highlights the exponential increase in donations to the Foundation in 2015, including more than $6 million that will go directly to support research over the next few years, and announced the addition of Duke University cancer researcher/physician and Lyme survivor Neil Spector, MD to its Scientific Advisory Board.
“With so many unanswered scientific questions related to Lyme, it is exciting to be a part of the growing focus on Lyme disease research and increased scientific creativity in approaches to identifying new diagnostics and treatments,” states Linda Giampa, Executive Director.
Bay Area Lyme Foundation Announces Grant Application for Two $100,000 Awards for Lyme Disease Research
‘Emerging Leader Award’ aims to attract new scientific talent to address scientific challenges of Lyme disease
Silicon Valley, California, October 5, 2015—The Bay Area Lyme Foundation, a leading national funder of Lyme disease research in the US, today announced a call for applications for two $100,000 Bay Area Lyme Foundation ‘Emerging Leader Award’ grants.These awards will be given to two promising scientists who embody the future of leadership in Lyme disease research in the US.The award recipients will be researchers in academia or the private sector who are currently at the post-doctoral level through the assistant Professor level, or equivalent, who have identified a defined approach to improve diagnostics or therapies for Lyme disease. Important criteria include demonstrated professional and scientific leadership in the biomedical sciences and a strong supporting scientific rationale for the project.Research efforts funded by the award are required to generate initial proof of concept within 12–18 months.
Why is it that Lyme disease is so little understood, so hard to diagnose, and so frustratingly difficult to get treated? Such were the questions discussed last night at the first of the new Bay Area Lyme Foundation Speaker Series talks.
2014 Emerging Leader Award recipient Jerome Bouquet, PhD, UCSF, began the program with a compelling overview of the history of Lyme disease and its pathology, highlighting some of the complicated attributes of the Lyme-causing spirochete and the manifestations of its infection. He touched on promising new technologies like the Tick Chip and the IBIS-developed Iridica, which use unbiased DNA amplification and multiplex assays with greater sensitivity (and more immediate results) than traditional methods. He also described promising developments in transcriptomics that have illustrated the lingering effects of the disease up to six months after treatment, and