Bay Area Lyme Foundation Tick Testing Program Adds Bartonella Pathogen Assay

FOR IMMEDIATE RELEASE

Media Contact:
Tara DiMilia, 908-947-0500, tara.dimilia@TMstrat.com

Bay Area Lyme Foundation Tick Testing Program Adds Bartonella Pathogen Assay

Nationwide Free Tick Testing Initiative Will Inform Citizen-Science Studies to Better Understand the Spread of Ticks Carrying Diseases Throughout U.S.

Silicon Valley, CA, July 11, 2019 — Bay Area Lyme Foundation, a leading sponsor of Lyme disease research in the U.S., today announced the relaunch of its nationwide free tick testing program, which will include an assay for Bartonella, a disease-causing pathogen carried by ticks. Based on the success of the Free Tick Testing Citizen Science program, Bay Area Lyme Foundation has significantly increased funding for the 2019 nationwide collection effort, adding an automated submission process and increased research support. Researchers anticipate this citizen- science program will enable the organization to unearth further discoveries.

Results of the first citizen-scientist study were published in the peer-review journals PLOS ONE in 2018, and International Journal of Health Geographics in 2019. The study, which evaluated the prevalence of disease-carrying ticks throughout the United States, and included a massive sample of more than 16,000 ticks collected from 49 U.S. states and Puerto Rico, led to the discovery of ticks capable of carrying Lyme and other tick-borne diseases in 83 counties, in 24 states, where these ticks had not been previously recorded. The program received a six-fold increase in tick submissions over initial estimates, representing unprecedented national coordination of a ‘citizen science’ effort and diagnostic investigation.

“The tremendous response to our initial collection program from residents all across the country has demonstrated a national desire for a greater understanding of tick-borne diseases, compelling our increased commitment,” said Linda Giampa, executive director at Bay Area Lyme Foundation. “Through a greater understanding of tick-borne disease risk across the U.S., we hope to better arm patients, clinicians and researchers with valuable insight in hopes of improved education, faster diagnosis, and more informed research toward making Lyme and other tick-borne illnesses easy to diagnose and simple to cure.”

As the only national free tick testing service, the program is designed to offer insights into the pathogens carried by ticks, and the results, in addition to any symptoms, should be discussed with a healthcare provider. Results from the tick test are not intended to be a diagnostic and individuals should discuss any symptoms or changes in health status with their physicians, as some tick bites will not transmit agents that cause disease. Since the founding  of the program in 2016, institutions and local government entities across the U.S. have been inspired to initiate similar free tick testing programs for the purpose of diagnostics and/or research.

Testing is available through a partnership with the Nieto Lab at Northern Arizona University, which will accept ticks from any state in the U.S. Ticks will be tested for six pathogens: Borrelia burgdorferi, which causes Lyme disease; Borrelia miyamotoi, which causes hard tick-borne relapsing fever; Anaplasma phagocytophilum, which causes human granulocytic anaplasmosis; Rickettsia rickettsii, the agent of Rocky-mountain spotted fever; the protozoan pathogen, Babesia microti; and Bartonella spp. Results will be available within twelve business days of receipt based on estimated volumes. The data will be reported to the sender by email, as well as added to our national database, to better understand ticks and tick-borne diseases.

“We are investigating changing trends in tick-borne diseases, and hope that improved understanding of the geography of human exposures to ticks and pathogens will revamp current perceptions of disease risk and the ticks’ spatial distributions,” said Dan Salkeld, PhD, research scientist, Colorado State University, who will be involved in evaluating data obtained from this program for potential future research publications.

U.S. residents seeking more information should visit: https://www.bayarealyme.org/lyme-disease-prevention/tick-testing/

About Bartonella
Bartonella are intracellular parasites that are transmitted by the bite of infected Ixodes ticks to humans, and infect red blood cells, macrophages, and endothelial cells. Symptoms of bartonella may consist of swollen or enlarged lymph nodes and may cause fevers and, more rarely, eye disorders, or infections of the liver, spleen, or bones. Many patients also experience an inflamed blemish at the transmission site which looks like a red bump on the skin and then may develop into a large pimple. Neurological involvement may also occur. There is a great need for an effective diagnostic and treatment for bartonella, and currently the most reliable assay for bartonella infection is through polymerase chain reaction (PCR) in blood, spinal fluid, and tissue.

About Bay Area Lyme Foundation
Bay Area Lyme Foundation, a national organization committed to making Lyme disease easy to diagnose and simple to cure, is the leading public not-for-profit sponsor of innovative Lyme disease research in the US. A 501c3 non-profit organization based in Silicon Valley, Bay Area Lyme Foundation collaborates with world-class scientists and institutions to accelerate medical breakthroughs for Lyme disease. It is also dedicated to providing reliable, fact-based information so that prevention and the importance of early treatment are common knowledge. A pivotal donation from The LaureL STEM Fund covers overhead costs and allows for 100% of all donor contributions to Bay Area Lyme Foundation to go directly to research and prevention programs. For more information about Lyme disease or to get involved, visit www.bayarealyme.org or call us at 650-530-2439.

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Media contact:
Tara DiMilia
Phone: 908-369-7168
Tara.DiMilia@tmstrat.com

Watch out for Tick Hitchhikers!

If your trail is overgrown and thick with tall grasses (and most are thanks to a very wet Spring this year) … then you need to be aware of TICK HITCHHIKERS…

Trails are dense with vegetation due to a wet spring.
Overhanging grass and twigs are perfect resting spots for hungry ticks waiting for their next ride.
Abundant ticks found in Marin county. Photo courtesy of Kaia Schweig.

Unlike their highway counterpart these tick free riders don’t ask, they just grab on as you, your pet (or your horse) pass by. They perch quietly on the grasses and weeds that line your trail or  backyard patiently waiting for  their next unsuspecting host (and likely meal).

All too easily, you end up taking home a few uninvited guests and if not careful about checking and removing these pests when you return home, you could also end up inviting possible infection into your home.

Ticks carry Lyme disease and many other related infections that can cause debilitating and lasting symptoms. Tick incidence is on the rise almost everywhere, in part due to climate change and wetter, milder winters. If you enjoy the outdoors, you need to be aware of these itinerant nuisances and you need to take precautions to stay safe…

Ticks Spread Farther Across US, Raising Risk of Lyme Disease Infections

Written by Julia Ries for Healthline on April 4, 2019; Reprinted with permission.

Although spring has just begun, tick season is already well underway. The slew of wet weather seen across the country has ticks crawling out and about earlier than usual. Seeing as most ticks thrive in warm, moist weather, tick season will likely be especially tough this year, health officials predict.

“While regions across the country were either unseasonably cold or warm this past winter, there’s one factor that almost all of them had in common: excessive moisture,” Jim Fredericks, PhD, the chief entomologist for the National Pest Management Association (NPMA), said in the NPMA’s bi-annual Bug Barometer press release.

“From record-setting snow in parts of Texas and Arizona to excessive rain in the southeast, continued precipitation predicted for most of the country this upcoming season will allow pest populations to continue to thrive and multiply,” he said.

New Study Provides Insight Related to Lyme Brain Fog

– Bonnie Crater, founder and vice-chair of the Board of Directors, Bay Area Lyme Foundation

“I was driving down a road that I’ve driven 1,000 times and suddenly I had no idea where I was or where I was going. So, I pull over to the side of the road to get myself oriented, and then 5-10 minutes later, I remembered and drove to my destination.”

Several friends affected by Lyme have told me of this same experience. It’s caused by the brain fog symptom of Lyme disease, which is often called “mild cognitive impairment” by physicians. I first learned about brain fog when my friend Laure and I founded the Bay Area Lyme Foundation. She explains it like this:

“My nature is to be prompt, attentive and on top of things. It’s important to me to remember people and conversations, and follow up later. Brain fog makes me feel like my brain is muffled with cotton, and it turns me into a “flake” which is very frustrating and hard for me to accept. There are times my brain has been so confused and my spatial awareness is so poor that I’ve actually walked right into a wall. Often, when I am experiencing brain fog, I have to read paragraphs numerous times, and can’t comprehend the content or remember the beginning of the paragraph by the time I’ve gotten to the end.”

As you can imagine, experiencing brain fog—and the cognitive dysfunction involving memory problems, lack of mental clarity, and poor concentration that comes along with it—is very scary for Lyme patients.

Bay Area Lyme Foundation and Project Lyme Join Forces to Fight Lyme Disease at the 2018 Lyme Gala

FOR IMMEDIATE RELEASE

Media Contact:
Tara DiMilia, 908-947-0500, tara.dimilia@TMstrat.com

 

Event Raises Awareness, and $1.4 Million for Research Related to Lyme Disease and other tick-borne illnesses, which can potentially be disabling, and even life-threatening

New York, NY, November 6, 2018 – Bay Area Lyme Foundation and Project Lyme, two organizations committed to halting the course of Lyme disease, came together to highlight the need for collaboration in the fight against Lyme during the inaugural 2018 Lyme Gala. The collaboration aims to improve awareness, education, and research of Lyme and other tick-borne infections, which can potentially be disabling, and even life-threatening. With Bay Area Lyme Foundation’s expertise working with scientists and institutions to implement valuable research, develop impactful educational programs and create novel initiatives such as the Lyme Disease Biobank, and Project Lyme’s focus on increasing awareness and improving education, these organizations hope to one day make Lyme and other tick-borne diseases easy to diagnose and simple to cure.

“Lyme disease is the most important health crisis of our time,” said 2018 Lyme Gala honoree, Bill Ford, CEO, General Atlantic. “This disease demands that we recruit and fund the best medical minds to fund a cure, and I am hopeful of the efforts of Project Lyme and Bay Area Lyme Foundation toward this goal.”

Summer Camp in Lyme Land

Lia GaertnerThe following is a guest post by one of our esteemed Advisory Board members, Lia Gaertner. Lia is a scientist and also a Lyme patient who has turned her own frustrating experience with the disease into a personal mission to help create greater awareness and understanding about the illness. This year’s explosion in tick counts all over the country necessitates extra vigilance for all of us who enjoy the outdoors. Here, Lia shares some of her family’s precautions.


I am proud to serve as a member of the science team at the Bay Area Lyme Foundation (BAL).  As a survivor of two severe Lyme infections on both the East and West coasts of the USA, I know quite a bit about ticks and tick-borne infections. During my twelve-year struggle with Lyme and babesia infections, my physician husband and I had to educate ourselves about ticks and tick-borne infections by going to medical conferences, studying with doctors, reading scientific literature, and mostly by experimenting with dozens of tests and therapies (on me). Now, we both receive daily requests from desperate people who cannot find sufficient information on how to treat their tick bite or tick-borne infections.

Pets and People: More than Companions

Michael Yabsley with petThe following is a post from a guest author, Dr. Michael J. Yabsley, MS, PhD, Associate Professor, Department of Population Health at the College of Veterinary Medicine, University of Georgia and Board of Directors, Companion Animal Parasite Council.

He shares some important observations on the relationship between our pets and their people, especially in the context of vector-borne pathogens like Lyme disease.

Pets are our companions. They share our lives, our homes and our family time. We often share the mutual love of activities such as hiking or simply playing fetch in the backyard. While companionship is clearly why we have pets, our bond with them is often far greater than we appreciate — we share the same environment and more often than not, the same health concerns. At the top of this list are several vector-borne diseases.