Making a Contribution and Feeling Heard—One Lyme Patient’s Experience of Participating in the Lyme Disease Biobank

Lyme Disease Biobank Collection

BAL Spotlights Series

 

In June of this year, Lyme Disease Biobank (LDB), led by Principal Investigator Liz Horn, PhD, MBI, conducted sample collection days at our partner site, Gordon Medical Associates, in San Rafael, CA. During the two-day event, we took the opportunity to sit down and talk with participants, hear their Lyme disease stories, and learn what motivated them to donate blood and urine samples to LDB.

Sarah Reid’s Lyme story is not dissimilar to the stories of many Lyme patients in California. She never saw a tick; she never had a rash; and for a very long time—despite countless doctors’ appointments, interventions, tests, and hours of research—she had absolutely no diagnosis for her bewildering kaleidoscope of symptoms. When she finally received confirmation from lab tests ordered by Gordon Medical Associates that she indeed had Lyme and Bartonella, the news was a massive relief initially. She finally had answers. However, as the diagnosis sunk in, it sparked reflection on her lifelong health struggles and launched her into a new world of confusion, frustration, and decision-making as she learned to navigate and manage her Lyme.

Bay Area Lyme Partners with Junior Golf Associations to Educate Thousands of Young Golfers about Tick Bite Prevention

Golfers are at high risk for Lyme disease

BAL Happenings Series

 

Promoting tick bite prevention and educating everyone about the serious health impacts of tick-borne diseases has been a consistent objective for Bay Area Lyme Foundation. After all, although the foundation’s mission is to make Lyme disease easy to diagnose and simply to cure, it would be so much better if nobody ever got bitten by an infected tick in the first place. But as ticks continue to proliferate and the number of people impacted by Lyme and tick-borne diseases grows, the need for tick bite prevention and education escalates accordingly. That’s why the foundation is excited about its three-year partnership with the American Junior Golf Association (AJGA), and an upcoming announcement with PGAJR, as they provide an unprecedented opportunity to reach thousands of young athletes and their families.

But why are golf courses high risk locations for tick bites? After all, the fairways are mown regularly, and golfers are typically walking around on grass that is short and frequently tended. Surely hiking, mountain biking and running in areas where trails are overgrown and you’re outside at times when infected ticks are most active would be higher risk?

What To Do If You Find a Tick

Ticktective Podcasts

Dan Wolff, aka "Tick Man Dan"

Dan Wolff “Tick Man Dan”, the founder and president of TickEase tweezers, the only patented, CDC-compliant, two-sided tweezer created expressly for removal of embedded ticks from people and pets.. He discusses his invention, what to do when you find a tick, ecology of ticks, and how Tony Fauci ended up at his bar mitzvah. Ticktective Video and Podcast Editor: Kiva Schweig.

Citizen Scientist Study Fuels Launch of First Series of Interactive U.S. County Maps of Ticks Carrying Diseases

Citizen Science Tick Testing Maps

FOR IMMEDIATE RELEASE

Citizen Scientist Study Fuels Launch of First Series of Interactive U.S. County Maps of Ticks Carrying Diseases

– Study finds ticks carrying disease-causing bacteria in 116 counties where they have not been previously documented by CDC –

PORTOLA VALLEY, CA, October 20, 2021—Bay Area Lyme Foundation, a leading nonprofit funder of innovative Lyme disease research in the U.S., today announced the launch of interactive national tick maps of U.S. counties based on data published in mSphere, a multidisciplinary open-access journal of the American Society for Microbiology. The new data identify Ixodes ticks carrying disease-causing pathogens in 116 counties which were not previously identified by the Centers for Disease Control (CDC). 

“The area known to harbor disease-carrying ticks continues to expand, and we hope people across the US will use these interactive maps to learn more about the risks for their hometowns, their family’s residences and vacation spots,” said Linda Giampa, executive director, Bay Area Lyme Foundation. “The citizen scientists contributing to this study allowed the country’s collective tick knowledge to advance further than even the CDC could do at this time. Gaining the support of citizen scientists allowed us to collect from many counties across the country where ticks are not usually collected and tested, or they are not tested for these pathogens.”

Tick-borne Diseases, PANS/PANDAS and Resulting Pediatric Anxiety and Eating Disorders

Ticktective Podcast: a Bay Area Lyme Foundation Program

Daniel Kinderlehrer, MD

Daniel Kinderlehrer, MD is the author of Recovery from Lyme Disease: The Integrative Medicine Guide to the Diagnosis and Treatment of Tick-Borne Illness. He is also the author of several review articles in medical journals and the Lyme Times. Dr. Kinderlehrer attended Tufts Medical School and is an internal medicine physician. He co-founded the New England Center for Holistic Medicine and has a private integrative medicine practice in Denver, Colorado, where he treats patients with tick-borne illnesses. Ticktective Video and Podcast Editor: Kiva Schweig.

Gratitude of a Celebrity, Business Woman, Author, Wife and Mom

Ticktective Podcasts

Ally Hilfiger

Ally Hilfiger, film producer, fashion designer, businesswoman, reality TV star, daughter of fashion mogul Tommy Hilfiger, Lyme advocate, and author of the book “Bite Me” shares her personal experience with tick-borne diseases and her path to healing. Ticktective Video and Podcast Editor: Kiva Schweig.

Herbal Medicines Demonstrate Potency Against Bartonella, a Disease-causing Pathogen, According to New Lab Study

Herbal Medicines Demonstrate Potency Against Bartonella

FOR IMMEDIATE RELEASE

Media Contact:
Tara DiMilia, 908-947-0500, tara.dimilia@TMstrat.com

Herbal Medicines Demonstrate Potency Against Bartonella, a Disease-causing Pathogen, According to New Lab Study

Three of these herbal medicines also have high potency against Borrelia burgdorferi, the bacterium that causes Lyme disease, and Babesia duncani, according to previous lab studies also funded by Bay Area Lyme Foundation

PORTOLA VALLEY, CA, August 5, 2021—Bay Area Lyme Foundation, a leading sponsor of Lyme disease research in the U.S., today announced the publication of new data showing that herbal medicines have potent activity in test tubes compared to pharmaceuticals commonly-prescribed for the treatment of Bartonella henselae, a bacterium believed  to be carried by ticks and the cause of cat scratch fever. This is the first study to find antimicrobial activity of some of these herbal medicines. Published in the journal Infectious Microbes & Diseases, the laboratory study was funded in part by the Bay Area Lyme Foundation.

“With increasing rates of tick-borne diseases and a consistent concern about the overuse of antibiotics, this early research of herbals is extremely exciting,” said Linda Giampa, executive director, Bay Area Lyme Foundation. “We are hopeful that future pre-clinical and clinical studies will continue to show that herbals have the same effectiveness as this study and other recently-published studies.”

Our Most Recent Tick Ecology Studies and What We’ve Discovered

Ticktective Podcasts

Dan Salkeld, PhD

Dan Salkeld, PhD, Bay Area Lyme Scientific Advisory Board member, is a Research Scientist in the Department of Biology at Colorado State University, and tick researcher extraordinaire. He discusses the ecology and epidemiology of Lyme and other emerging tick-borne pathogens such as Borrelia miyamotoi. Ticktective Video and Podcast Editor: Kiva Schweig.

 

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Bay Area Lyme Foundation Partners with American Junior Golf Association to Provide Critical Education About Tick-borne Disease

Golfers are at high risk for Lyme disease

FOR IMMEDIATE RELEASE

Media Contact:
Tara DiMilia, 908-947-0500, tara.dimilia@TMstrat.com

Bay Area Lyme Foundation Partners with American Junior Golf Association to Provide Critical Education About Tick-borne Disease

Golf is Estimated to Be Among the Highest Risk Sports for Contracting Lyme and Other Tick-borne Diseases

Portola Valley, CA, July 15, 2021 — Bay Area Lyme Foundation, a leading sponsor of Lyme disease research in the US, and the American Junior Golf Association have announced a new partnership aimed at educating young golfers about Lyme disease and providing tips for preventing tick bites. For this partnership, Bay Area Lyme Foundation will provide prevention materials, tick removal keys, Tick Tock Naturals® organic tick repellent and Sawyer® picaridin lotion to all AJGA members. In addition, Bay Area Lyme Foundation will become a Leadership Links charity partner, and two tournaments will be named for the Foundation by the end of 2023.

“As former AJGA and Harvard Division 1 golfers, my brother and I wish we had been educated on the risks associated with Lyme disease and the prevalence of ticks throughout the U.S., and ways to prevent being bitten,” said Nina Fairbairn (AJGA ’13, Harvard ’17), an investment partner who volunteers for Bay Area Lyme Foundation as an Advisory Board member and is spearheading this partnership for the Foundation. “Few golfers seem aware of the risks and even fewer take precautions, and it’s imperative for us to change this.”

Golf courses are a hotbed for ticks that can carry Lyme disease. Ticks flourish in areas between woods and open spaces, which is the exact terrain of golf courses, and live on the small forest animals that often occupy golf courses. Lyme disease is the most common vector borne illness in the United States with at least 476,000 new cases each year.

First Female US Air Force Thunderbird Pilot and Her Fiercest Battle Yet

Ticktective Podcasts

Col. Nicole Malachowski

Col. Nicole Malachowski, first female Thunderbird pilot, National Women’s Hall of Famer, and Former Deputy Director for US Air Force Readiness and Training for the Office of the Under Secretary of Defense for Personnel and Readiness, and Bay Area Lyme Foundation Ambassador shares her challenging journey from military fighter to Lyme warrior. Ticktective Video and Podcast Editor: Kiva Schweig.