New Pathogen Discovered By Researchers Who Discovered Lyme – But Was Not Reported

FOR IMMEDIATE RELEASE

Media Contact:
Tara DiMilia, 908-947-0500, tara.dimilia@TMstrat.com

New Pathogen Discovered By Researchers Who Discovered Lyme – But Was Not Reported

Bay Area Lyme Foundation Responds to News Related to Initial Studies of Lyme Disease

Portola Valley, CA, October 12, 2016 – Bay Area Lyme Foundation, an organization dedicated to making Lyme disease easy to diagnose and simple to cure, is deeply disturbed by the news that researchers involved in the initial discoveries of Lyme disease omitted critical information related to additional bacteria that may have contributed to illness in early cases. This information was revealed in a story today in STAT News titled “The ‘Swiss Agent’: Long forgotten research unearths new mystery about Lyme disease.”

This new development clearly points to a critical need to reexamine much of the current orthodoxy in Lyme disease.

Hope, Faith, and Perseverance — How One Family Overcame Lyme Disease

Eliza Hemenway_HS_312Bay Area author and noted documentary filmmaker Eliza Hemenway recently turned her journalistic eye toward her own family to document a notably personal and tryingly poignant story about her family’s trials with Lyme disease and the baffling enigma that surrounds the illness and its treatment. Her daughter, Katherine, just seven years old when infected, suffered for years before successfully being diagnosed. And even after diagnosis, the family struggled to get the care they needed.

“I am a Bay Area mother who wrote Paris in Oakland to be a story of hope and encouragement to the Lyme community, something I desperately needed when my daughter was first diagnosed and I was trying to understand the controversies and confusion surrounding Lyme. 

Primary Care Medicine and the Challenges of Diagnosing Lyme Disease

Bay-Area-Lyme-Foundation-Speaker-SeriesOn March 2nd, Bay Area Lyme again hosted another of its Speaker Series events. These popular salon-style events allow community members to come together in an intimate forum to share stories and hear directly from experts in the field.

The featured speakers this time were Dr. Christine Green, MD, a recognized leader in Lyme disease diagnosis and treatment and Allie Cashel, author of Suffering the Silence: Chronic Lyme Disease in an Age of DenialBoth shared personal and professional perspectives on the challenges of diagnosing Lyme disease. 

Bay Area Lyme Foundation Offers Free Tick Testing Nationwide

FOR IMMEDIATE RELEASE

Media Contact:
Tara DiMilia, 908-947-0500, tara.dimilia@TMstrat.com

Bay Area Lyme Foundation Offers Free Tick Testing Nationwide

Free Tick Testing Initiative Is First In The Nation and Aims to Map Tick-borne Diseases Across the U.S. Through Crowd-sourcing

Silicon Valley, CA, February 16, 2016 — Bay Area Lyme Foundation, a leading nonprofit funder of innovative Lyme disease research in the US, today announced that the Foundation is the first to offer free tick testing for residents of the U.S.  Testing is available through a partnership with Nate Nieto, PhD, Assistant Professor, Department of Biological Sciences, Northern Arizona University and his lab.  Bay Area Lyme Foundation hopes to use this crowd-sourced data as a vehicle for gaining a greater understanding of the geography of tick-borne diseases in the U.S.  If successful in accumulating data, it will be the first crowd-sourced study of its kind.

Breaking the Silence: Finding a Voice to Change the Face of Lyme

“We just have to speak up so that people can get better.” It’s a pretty straight forward line in the transcript of one of the stories in Allie Cashel’s new book Suffering the Silence: Chronic Lyme Disease in an Age of Denial (2015), but it’s also a call to action — a call inviting others to find their voices and share their stories to create the public momentum for change. Lyme disease is an epidemic that should be of concern to the general public and yet has too little awareness and far too few answers.

Investigating and Living with the Elusive Culprit of Lyme Disease

Why is it that Lyme disease is so little understood, so hard to diagnose, and so frustratingly difficult to get treated? Such were the questions discussed last night at the first of the new Bay Area Lyme Foundation Speaker Series talks.

Field Mustard by Robert Buelteman
Field Mustard by Robert Buelteman

2014 Emerging Leader AwardJerome Bouquet recipient Jerome Bouquet, PhD, UCSF, began the program with a compelling overview of the history of Lyme disease and its pathology, highlighting some of the complicated attributes of the Lyme-causing spirochete and the manifestations of its infection. He touched on promising new technologies like the Tick Chip and the IBIS-developed Iridica, which use unbiased DNA amplification and multiplex assays with greater sensitivity (and more immediate results) than traditional methods. He also described promising developments in transcriptomics that have illustrated the lingering effects of the disease up to six months after treatment, and