On May 27th, Lia Gaertner, a member of our science committee, and her husband, Sunjya Schweig, MD, discussed tick-borne disease prevention and Lyme disease treatments on KTVU Fox News in San Francisco. Many thanks to Lia and Sunjya for their valuable help with our awareness and education programs.
May is Lyme Awareness month. And it is indeed time to be aware. Thanks to El Niño, it’s a wetter Spring than we’ve had in several years. That means we have lots of green grass, damp leaf litter, and overgrown trails and paths. It also means the ticks are out. And early spring means nymph season — these nymphs are young ticks, not much bigger than a poppy seed … the kind that are easy to miss with a quick glance.
The good news is that ticks can’t fly, jump, or even run. But they do “quest” — they hang out on leaves, blades of grass, and branches, tiny legs poised to grab onto a warm body passing by. Ticks need to feed in order to progress to the next life stage and perching ready to grab a free ride (and meal!) on an unwitting passerby is how they ensure their survival.
When hiking or biking in the woods, if you keep to the center of the trail and avoid bushwhacking and brushing up against high grasses or other vegetation, your risk of picking up a parasitic passenger is pretty low. Once you leave the trail for a pit stop, however, the risk rises exponentially. Ticks are carried by deer and other small mammals that also like to use the trails so the highest concentration of ticks is often close to trails.
On March 2nd, Bay Area Lyme again hosted another of its Speaker Series events. These popular salon-style events allow community members to come together in an intimate forum to share stories and hear directly from experts in the field.
Dr. Ben Beard, PhD, Chief Bacterial Diseases Branch at the CDC, visited with Bay Area Lyme and invited guests as part of the foundation’s ongoing speaker series. This donor-sponsored forum brings together researchers and other experts in an intimate forum for topical discussions with community members. Past events have included Emerging Leader Award winners, clinicians, and patient advocates.
The next event, on Wednesday, March 2, will feature Dr. Christine Green, Director of Education for ILADS, and Allie Cashel, author of Suffering the Silence: Chronic Lyme Disease in an Age of Denial.
As Chief of the CDC’s Bacterial Diseases Branch, Division of Vector-Borne Diseases in Fort Collins, Colorado, Dr. Beard coordinates CDC’s programs on Lyme disease, plague, and tularemia. His scientific interests include public health and the biology, ecology, and genetics of insect-borne diseases and vectors. More recently, he has been extensively involved in the CDC’s work to understand and mitigate the potential impact of climate variability and change on infectious disease ecology. He shared the CDC’s concerns about the expanding disease burden and distribution of Lyme and affirmed the importance of attracting new research interest and efforts focused on Lyme disease and other tick-borne infections.
Free Tick Testing Initiative Is First In The Nation and Aims to Map Tick-borne Diseases Across the U.S. Through Crowd-sourcing
Silicon Valley, CA, February 16, 2016 — Bay Area Lyme Foundation, a leading nonprofit funder of innovative Lyme disease research in the US, today announced that the Foundation is the first to offer free tick testing for residents of the U.S. Testing is available through a partnership with Nate Nieto, PhD, Assistant Professor, Department of Biological Sciences, Northern Arizona University and his lab. Bay Area Lyme Foundation hopes to use this crowd-sourced data as a vehicle for gaining a greater understanding of the geography of tick-borne diseases in the U.S. If successful in accumulating data, it will be the first crowd-sourced study of its kind.
The Steven & Alexandra Cohen Foundation Grants $6.5 Million to
Bay Area Lyme Foundation
Gift is part of the largest private donation for Lyme disease research—100% of grant will go directly to Lyme disease research programs.
SILICON VALLEY, California, December 17, 2015 –The Bay Area Lyme Foundation today announced that it received a $6.5 million grant from the Steven & Alexandra Cohen Foundation, the largest private donation ever given to Lyme disease research. The gift will support Bay Area Lyme’s mission of using new scientific research and innovations to make Lyme disease easy to diagnose and simple to cure.
“I was shocked to learn how many people suffer from Lyme disease in silence, and how much we still need to do to raise awareness and help find a cure,” said Alex Cohen, President of the Steven & Alexandra Cohen Foundation. “This gift is incredibly personal to me as I have experienced, first-hand, the chronic and debilitating side effects of this relatively unknown disease. We share Bay Area Lyme Foundation’s desire to find a cure for Lyme disease and hope that this gift will help pave the way to that important work.”
Bay Area Lyme Foundation To Provide Tick and Lyme Disease Education in the Solano Resource Conservation District
Program is open to the public and part of extensive education program throughout the Bay Area
Silicon Valley, California, October 26, 2015—The Bay Area Lyme Foundation, which aims to make Lyme disease easy to diagnose and simple to cure, will provide training about ticks and Lyme disease to naturalists, outdoor educators, program managers and the general public in the Solano Resource Conservation District, as well as other local agencies, to better educate area students, parents and classroom teachers. The program is part of an educational initiative started at Bay Area Lyme Foundation to inform California residents about prevention, the proper removal of ticks, and symptoms of tick-borne diseases.It is based on new information that Lyme disease is endemic to the area.
Bay Area Lyme Foundation Announces Grant Application for Two $100,000 Awards for Lyme Disease Research
‘Emerging Leader Award’ aims to attract new scientific talent to address scientific challenges of Lyme disease
Silicon Valley, California, October 5, 2015—The Bay Area Lyme Foundation, a leading national funder of Lyme disease research in the US, today announced a call for applications for two $100,000 Bay Area Lyme Foundation ‘Emerging Leader Award’ grants.These awards will be given to two promising scientists who embody the future of leadership in Lyme disease research in the US.The award recipients will be researchers in academia or the private sector who are currently at the post-doctoral level through the assistant Professor level, or equivalent, who have identified a defined approach to improve diagnostics or therapies for Lyme disease. Important criteria include demonstrated professional and scientific leadership in the biomedical sciences and a strong supporting scientific rationale for the project.Research efforts funded by the award are required to generate initial proof of concept within 12–18 months.
“We just have to speak up so that people can get better.” It’s a pretty straight forward line in the transcript of one of the stories in Allie Cashel’s new book Suffering the Silence: Chronic Lyme Disease in an Age of Denial (2015), but it’s also a call to action — a call inviting others to find their voices and share their stories to create the public momentum for change. Lyme disease is an epidemic that should be of concern to the general public and yet has too little awareness and far too few answers.
The following is a guest post from a local veterinarian and long-time SF Bay area resident, Dr. Michael Sterns, DVM. He shares a story about the recent diagnosis of a four-legged patient with Lyme disease. It is rare for the blood tests to come back definitive in dogs so this case is unusual but the lessons are clear and relevant for all dog owners here and around the country.
I thought people might be interested in a case we saw last week, and might truly see how an ounce of prevention really is worth a pound of cure! Lyme disease in your dog is so easily prevented here in the SF Bay area, this story will surely leave you scratching your head. Happily, the dog in question will be OK – all because we caught it so early.