Bay Area Lyme Foundation Sees Turning Point for Lyme Disease in 2017
Organization Leaders Honored with HHS Appointment, Jane Seymour’s Open Hearts Award, Among Other Pivotal Events
PORTOLA VALLEY, Calif., December 21, 2017—Bay Area Lyme Foundation, a leading sponsor of Lyme disease research in the US, today announced that the organization granted $2 million in 2017 for Lyme research and education, and saw an increase of engagement from scientists, the government and noted celebrities. Studies funded by the foundation and published in 2017 provide significant support to the widely-debated scientific belief that Lyme bacteria persist after standard antibiotic treatment. The foundation continues to demonstrate success in bringing new scientific talent to the fight against tick-borne diseases.
New Study Finds Lyme Bacteria Survive a 28-day Course of Antibiotics When Treated Four Months After Infection by Tick Bite
All subjects treated with antibiotics were found to have some level of infection 7–12 months post treatment.Despite testing negative by antibody tests for Lyme disease, two of 10 subjects were still infected with Lyme bacteria in heart and bladder. Lyme bacteria which persist are still viable.
Portola Valley, California, Dec. 13, 2017—Bay Area Lyme Foundation, a leading sponsor of Lyme disease research in the US, today announced results of two papers published in the peer-reviewed journals PLOS ONE and American Journal of Pathology, that seem to support claims of lingering symptoms reported by many patients who have already received antibiotic treatment for the disease.
Bay Area Lyme Foundation Now Accepting Applications for $450,000 in Emerging Leader Award Research Grants
‘Emerging Leader Award’ aims to attract new scientific talent to address challenges of Lyme disease
Portola Valley, California, December 5, 2017—Bay Area Lyme Foundation, a leading sponsor of Lyme disease research in the US, today announced a call for applications for three Bay Area Lyme Foundation ‘Emerging Leader Award’ grants, one for $250,000 and the other two for $100,000. These awards will be given to promising scientists who embody the future of leadership in Lyme disease research in the US. The award recipients will be researchers in academia or the private sector who have demonstrated professional and scientific leadership in the biomedical sciences and who can offer scientific rationale for a research project that can advance diagnostics or treatments for Lyme disease.
Bay Area Lyme Foundation Awards Grants to Researchers Exploring Novel Ways to Detect, Treat Lyme Disease
Massachusetts Institute of Technology and Brandeis University Researchers are the Awardees of the 2017 Emerging Leader Awards
Portola Valley, Calif., July 11, 2017 – Bay Area Lyme Foundation, the leading national nonprofit funder of innovative Lyme disease research, today announced that the winners of its 2017 Emerging Leader Award, are James J. Collins, PhD, Professor, Massachusetts Institute of Technology and Yuko Nakajima, PhD, Postdoctoral Fellow, Brandeis University. Dr. Collins was awarded a $250,000 grant to research an RNA direct detection diagnostic for early Lyme disease, while Dr. Nakajima received a $100,000 grant to investigate potential treatments to block immune evasion by the bacteria causing Lyme disease.
Bay Area Lyme Foundation’s LymeAid 2017 Raises $850,000 to Boost Lyme Disease Research
The event highlights the increasing level of scientific commitment toward Lyme disease and fosters much-needed investment and research in diagnostics and treatments for the disease
Portola Valley, CA (May 22, 2016) – Bay Area Lyme Foundation, the leading public not-for-profit sponsor of innovative Lyme disease research in the US, brought together scientists, philanthropists, celebrities and patients for the fifth annual LymeAid®, an event aimed at making Lyme disease easy to diagnose and simple to cure.The benefit dinner and concert raised more than $850,000, of which 100% will go directly to fund research for Lyme disease. During the past 5 years, the event has collectively raised $2.4 million specifically for Lyme disease research.
Last month, Linda offered five steps that have had a positive impact on the success of Bay Area Lyme Foundation. Over the next several months, she is offering a closer look at each of these steps
For years, venture capitalists and non-profit organizations were seen as polar opposites, the antithesis of one another. But, as non-profit leaders, we can learn a great deal from our venture capitalist counterparts. Venture capitalists aim to ensure the companies they fund succeed, and our role as non-profits is to ensure our mission is accomplished. Both are conduits entrusted with investing the financial resources of others – venture capitalists are beholden to their investors while nonprofits have the same responsibility to their donors.
By Jo Ellis, Education Outreach, Bay Area Lyme Foundation
Bay Area Lyme at 2017 Association of Environmental and Outdoor Educators Annual Conference in La Honda, CA
Spreading awareness about Lyme and tick-borne infections among high-risk groups has been a key objective for our growing education outreach program at Bay Area Lyme Foundation and the Association for Environmental and Outdoor Educators (AEOE) has been part of our overall education outreach strategy. For the last three years, Bay Area Lyme has attended AEOE’s annual spring conference, raising awareness about Lyme and teaching professional naturalists, outdoor educators, and science teachers how to protect both themselves and the children they serve against Lyme and other tick-borne diseases.
By Jo Ellis, Education Outreach, Bay Area Lyme Foundation
On Wednesday, March 8, Dr. Sunjya Schweig and his wife, Lia Gaertner, together gave a deeply affecting and informative presentation sharing their personal and professional experiences with Lyme disease. The talk was part of the ongoing Distinguished Speaker Series. What follows is a synopsis of some of the highlights.
Lia Gaertner, a member of the Bay Area Lyme Foundation Science Committee, and Dr. Schweig, who is on the foundation’s Advisory Board, bring a wealth of professional expertise and knowledge to the table. But their story starts on a personal note, for it was just one month after Dr. Schweig started working in private practice that Lia — after 10 years of battling serious illness, unexplained symptoms, and debilitating physical and mental challenges — was finally diagnosed with Lyme disease. Together, the couple took what they describe wryly as a “rapid descent together down a rabbit hole” – a deep dive into Lyme, trying to learn as much as possible for their survival.
While the high-tech business sector is so fast-paced that every day offers valuable progress, my days as CEO in this industry still left me wanting to do more. As many of you can appreciate, I longed to truly make a difference in the lives of other people. And although I did get incredible satisfaction from our company’s progress, I wanted my contribution to society to be more than helping to improve the speed and efficiency of the business world.
So, I decided to make a major life change.
As I considered a range of non-profit opportunities, I focused on identifying a role that would allow me to continue the fast-pace I was used to. It was also important that I use the leadership, operations, marketing and sales skills I had learned and honed through years climbing the ranks of Oracle and helping to start and run several other software companies.
Lyme disease is a nationally notifiable disease, recognized and tracked by the federal government Centers for Disease Control and Prevention (CDC) for surveillance purposes. Surveillance data provides important information for assessing public health risks and allocating research dollars. Per the CDC, “The goal of Lyme disease surveillance is not to capture every case, but to systematically gather and analyze public health data in a way that enables public health officials to look for trends and take actions to reduce disease and improve public health.” However, these statistics have important implications for individual patients as well.
In this post, Bay Area Lyme Research Grant Director and Advisory Board Member Wendy Adamsdiscusses some important changes to the CDC definitions of Lyme disease and some concerning implications for patients in the state of California.
The case definition for Lyme disease is only intended to be used to determine cases for surveillance purposes and not to represent the full incidence of Lyme in a given area. However, this subtlety is often confusing for doctors who see these low case numbers as proof that they do not need to consider a Lyme diagnosis in CA. The low numbers also are convenient for insurance companies who inappropriately use this narrow definition as diagnostic criteria to deny coverage for patients whose cases don’t meet the definition.