Ticktective with Dana Parish: Brain Bugs: A Neurologist Discusses Lyme, PANS, & PANDAS

Ticktective™ with Dana Parish

Elena Frid, MD

Dr. Elena Frid is a Neurologist and Clinical Neurophysiologist specializing in Infection Induced Autoimmune Disorders. With clinical interests in Autoimmune Neurology, she sees patients with complex cases of Lyme disease + co-infections, PANS/PANDAS, and Autoimmune conditions resulting in various neurological complaints. Using cutting-edge diagnostic tools and clinical expertise, she differentiates between idiopathic and organic causes of various neurological disorders. Her knowledge has been sought by patients from all over the United States, as well as Canada and Europe. Dr. Frid attended a coveted BA/MD program at Robert Wood Johnson Medical School (RWJMS) and went on to North Shore-LIJ Health Care Systems (currently Northwell) where she completed a residency in Neurology and a fellowship in Clinical Neurophysiology.

Dana Parish’s Personal Odyssey: Her Quest for the Right Diagnosis and Treatment of Lyme Disease 

BAL Spotlights Series

 

Dana Parish
Dana at The Voice where she performed her song “Broken Ones”

Dana Parish is a singer/songwriter based in New York City, signed with SonyATV. She is renowned for her captivating vocals and emotionally charged performances. Her debut single, ‘Not My Problem,’ from her album Uncrushed, reached the #23 spot on the Billboard charts, establishing her as one of the highest-charting independent artists in history.  She notably contributed two songs, ‘Thankful’ and ‘Always be Your Girl,’ to Celine Dion’s album Loved Me Back to Life. Additionally, her song ‘Someday I’ll Fly’ by G.E.M. became a #1 hit in China. Another one of her compositions, ‘Broken Ones,’ performed by Jacquie Lee, a finalist on Season 5 of The Voice, achieved chart success. A fearless advocate for the Lyme community, Dana champions the cause of individuals suffering from Lyme and tick-borne diseases. In May 2016, she delivered a heartfelt performance of ‘Pull You Through’ at LymeAid, Bay Area Lyme’s annual fundraising event, contributing to raising more than $815,000 for Lyme disease research. In 2021, she co-authored Chronic: The Hidden Cause of the Autoimmune Pandemic and How to Get Healthy Again with Steven Phillips, MD. Dana hosts the Ticktective podcast and video series for Bay Area Lyme Foundation and is a member of our advisory board.

In this interview, Dana Parish discusses her life before being diagnosed with Lyme disease and the challenges she faced in getting accurate diagnosis and correct treatment. She talks about her career in the music industry before she was bitten by a tick. Dana shares her experience with being misdiagnosed and the physical and mental symptoms she experienced. She also discusses the importance of raising awareness about Lyme disease and advocating for better treatment options.  Dana also touches on the similarities between persistent Lyme disease and Long Covid and the potential for overlap in research and treatment. She emphasizes the importance of being your own advocate and demanding proper treatment. Finally, Dana shares her thoughts on the current protocol for treating tick bites and the need for aggressive and early treatment.

Ticktective with Dana Parish: Stealth Invader: Unveiling Lyme’s Hidden Past

Ticktective™ with Dana Parish

Kris Newby

Kris Newby is an award-winning medical science writer and the senior producer of the Lyme disease documentary UNDER OUR SKIN, which was a 2010 Oscar semifinalist. Her book BITTEN: The Secret History of Biological Weapons and Lyme Disease has won three international book awards for journalism and narrative nonfiction. She has two engineering degrees and has worked as a science/technology writer for Stanford Medical School, Apple, and other Silicon Valley companies.

To read the podcast transcript, click here.

Ticktective with Dana Parish: From Harvard MD to MS Patient: Wisdom from Both Sides

Ticktective Podcast: a Bay Area Lyme Foundation Program

Annie Brewster, MD

Annie Brewster is an Assistant Professor of medicine at Harvard Medical School, a practicing physician at Massachusetts General Hospital, in Boston, a writer and a storyteller. She is also a patient, diagnosed with Multiple Sclerosis in 2001. In response to the disconnection she experienced in healthcare, both as a patient and a provider, and motivated by her belief in the power of stories, she started recording patient narratives in 2010. Integrating her personal experiences with the research supporting the health benefits of narrative, she founded Health Story Collaborative (HSC) in 2013. HSC is dedicated to helping individuals navigating health challenges find meaning, and ultimately heal, through storytelling. She is excited by interdisciplinary, cross-institutional collaborations that break through resistance to change. She is widely published in the press and is author of The Healing Power of Storytelling: Using Personal Narrative to Navigate Illness, Trauma, and Loss (2022).

Biosafety is Key to Our Future: The Truth About Germs, Lab Leaks, and Information Warfare

Raina MacIntyre, MD, PhD

Ticktective Podcast Transcript

 

In this episode of Ticktective™, Dana Parish talks with Raina MacIntyre (MBBS Hons 1, M App Epid, PhD, FRACP, FAFPHM) about how lab safety lapses are still leading to frequent undocumented lab leaks, her concerns over Long Covid and the ongoing dangers of the pandemic, and how public health agencies use information warfare to keep everyone in the dark about what is happening at the forefront of biomedical investigations, especially in the field of experimental gain of function research. Raina MacIntyre is Head of the Biosecurity Program, Kirby Institute, University of New South Wales (UNSW), Australia, and author of Dark Winter. She has over 450 peer-reviewed publications, has received many awards including the Sir. Henry Wellcome Medal from the Association of Military Surgeons of the US and is a member of the WHO COVID-19 Vaccine Composition Technical Advisory Group and WHO Smallpox and monkeypox working group.

Dana Parish: Welcome to the Ticktective podcast, a program of the Bay Area Lyme Foundation, where our mission is to make Lyme disease easy to diagnose and simple to cure. I’m your host Dana Parish, and I’m the co-author of the book Chronic and I sit on the advisory board of Bay Area Lyme Foundation. This program offers insightful interviews with scientists, clinicians, patients, and other interesting people. We’re a nonprofit based in Silicon Valley, and thanks to a generous grant that covers a hundred percent of our overhead, all of your donations go directly to our research and prevention programs. For more information about Lyme disease, please visit us@bayarealyme.org.

Dana Parish: Hi, I’m Dana Parish and I’m thrilled today to welcome Dr. Raina McIntyre. Let me tell you a little bit about her. Raina McIntyre, MBBS is head of the Biosecurity program, Kirby Institute, UNSW. She leads research on prevention of epidemic infections, including EPI watch, an AI-driven early warning system for serious outbreaks. She has over 450 peer reviewed publications. She’s received many awards including the SIR Henry Welcome Medal from the Association of Military Surgeons of the US. She was on a US National Academies of Science Engineering Medicine Pandemic Consensus Committee, and she’s a member of W’S Covid 19 Vaccine Composition Technical Advisory Group and WHO Smallpox and Monkeypox Working Group. Has written over 450 publications and I am really pleased to have met you through this new nonprofit that we’re both a part of called BiosafetyNow.org. You know, it’s an honor to be able to learn from you and meet you, and I’d love to talk a little bit about your background and what it means to be a biosecurity expert and an MD and a PhD in your area of expertise.

Raina MacIntyre: I started my career as a medical doctor and I was going to be a cardiologist because I’d done a lot of cardiology, in my specialist physician training and wanted to do cardiology. But I was also interested in epidemiology. I saw an ad for this Master of Applied Epidemiology, which is the Australian Field Epidemiology Training Program, which is a type of hands-on training in outbreak investigation that was pioneered by the US CDC called the Epidemic Intelligence Services. And in some countries when you do it, you get a degree. So, I decided to do that degree and it was quite life-changing for me because it was a new way of learning where you do just short bursts of classroom learning, but then you go out in the field, you investigate outbreaks and you apply the learning that you had in the classroom to practical problems in the field where you’re investigating outbreaks, trying to work out: What is this? Where did it start? How can it be stopped?

Ticktective with Dana Parish: Infectious Minds: Unraveling the Link Between Infections & Psychiatric Disorders

Ticktective Podcasts

Robert Bransfield, MD

Dr. Robert C. Bransfield, MD, DLFAPA is a leading expert in the relationship between microbes and mental illness. He’s a graduate of Rutgers College and the George Washington University School of Medicine and board certified by the American Board of Psychiatry and Neurology in Psychiatry. He is a Clinical Associate Professor of Psychiatry at Rutgers—Robert Wood Johnson Medical School and the Hackensack Meridian School of Medicine. Dr Bransfield has authored and co-authored a number of publications in peer-reviewed literature.

Ticktective with Dana Parish: Biosafety Is Key to Our Future: the Truth About Germs, Lab Leaks, and Information Warfare

Ticktective Podcasts

Raina MacIntyre, MD, PhD

Raina MacIntyre (MBBS Hons 1, M App Epid, PhD, FRACP, FAFPHM) is Head of the Biosecurity Program, Kirby Institute, UNSW and author of “DARK WINTER”. She has over 450 peer-reviewed publications, has received many awards including the Sir Henry Wellcome Medal from the Association of Military Surgeons of the US, and is a member of the WHO COVID-19 Vaccine Composition Technical Advisory Group and WHO Smallpox and monkeypox working group.

To read the podcast transcript, click here.

Ticktective: Healthy Nutrition Is Crucial for Those with Lyme Disease and Chronic Health Conditions

Ticktective Podcast: a Bay Area Lyme Foundation Program

Lindsay Christensen, MS, CNS, LDN, A-CFHC, CKNS

Lindsay Christensen is the author of the book, “The Lyme Disease 30-Day Meal Plan: Healthy Recipes and Lifestyle Tips to Ease Symptoms”. She provides nutrition consulting services at the California Center for Functional Medicine and her private practice, Ascent to Health.

Treating Complex Chronic Diseases: Novel Therapeutic Options for Lyme Patients

Bay Area Lyme Speaker Series with Steven Harris

BAL Happenings Series

 

Bay Area Lyme Speaker Series San Jose 2022
Dr Steven Harris speaking at the Bay Area Lyme Speaker Series in San Jose, September 29, 2022

Dr. Steven Harris, a physician specializing in Lyme at Pacific Frontier Medical, was guest speaker as part of our Distinguished Speaker Series. His presentation on the complexity of tick-borne diseases is transcribed below to share his invaluable insights into novel treatment options for those living with chronic/persistent Lyme and other intractable infections that severely curtail patients’ quality of life, bringing hope and restoring health to many. Note: This transcribed presentation has been edited for clarity.

What is “Precision Medicine”?

“The concept of precision medicine, which is a growing area, is where we look at an individual and try to create a tailored plan for that person. I think many doctors wish that we could have a ‘cookbook’ approach to medicine that would work for our patients. But unfortunately, that approach doesn’t work. Luckily, here in the San Francisco Bay Area, there are doctors offering precision medicine including Dr. Sunjya Schweig in Berkeley, Dr. Christine Green, with us at Pacific Frontier Medical, and Dr. Eric Gordon, at Gordon Medical Associates in Marin and others. And thankfully, we have Stanford and UCSF (our local medical centers) that we work peripherally with. In addition, the Open Medicine Foundation is making great strides in understanding illness and Dr. Mike Snyder’s group at Stanford who are working on multi omics for chronic fatigue that track an individual patient’s data.

Mike Snyder, PhD
Mike Snyder, PhD, Stanford University

“These doctors are working in their own fields, not necessarily just tick-borne diseases, but our work overlaps. For example, the Snyder Lab multi-omic study involves genomics, epigenomics, metabolomics, where they are looking at tons of data and assimilating a lot of this different data to try to create treatment plans that work for the individual, because of the fact that a ‘cookbook’ approach doesn’t work for this group of chronic complex patients. For example, we look at someone’s multi-ome and the parts that make them up, including their microbiome, epigenome among many others, which is becoming a bigger and more exciting field. One of the practical aspects we try to determine is how to address an individual’s level of inflammation, the diversity of their personal bacterial flora, and how to help compensate for any deficiencies—or over abundances—that help contribute to disease.

Ticktective with Dana Parish: All About Kids with Lyme, PANS, Mold Illness

Ticktective™ with Dana Parish

Charlotte Mao, MD

Dr. Charlotte Mao is a pediatric infectious diseases (ID) physician with special focus on Lyme disease and associated infections. She received her medical degree at Harvard Medical School and did her pediatric and infectious disease training at Boston Children’s Hospital. Ticktective Video and Podcast Editor: Kiva Schweig.

To read the podcast transcript, click here.