You can make a difference!

Each participant’s donation has the ability to provide samples for more than 50 research projects.

There are three ways to get involved and help advance research:

 

1) Know the Symptoms – Tell your Family, Friends, and Acquaintances

Make sure family, friends and acquaintances know the symptoms of Lyme disease. If you or someone you know is experiencing early symptoms, or have just been diagnosed, please consider donating a blood sample by making an appointment at one of our collection centers. The centers are located in select east coast, west coast and upper mid-west endemic areas. Donors must be 10 years of age or older and complete an authorization and eligibility screening prior to donating blood. Click here for a list of our collection centers.

2) Register Now for Future Organ Donation

To make a difference in the future, please register now for our tissue program. All patients with Lyme disease are encouraged to register with Lyme Disease Biobank Tissue Program through our partner NDRI, and please also register with MyLymeData. Registering for the Lyme Disease Biobank Tissue Program through our partner NDRI as a future donor of post-mortem organs is critical, as it is rarely possible to evaluate how tick-borne disease may infect vital organs such as a person’s heart and/or brain. By also providing information about your symptoms and medical history to MyLymeData, you can assist researchers in understanding the disease. More information can be found by visiting NDRI’s Private Donor Program website or by calling NDRI at 800-222-NDRI (6374), Option 5.

3) If You Are Having Surgery

If you have a surgery that removes tissue from an organ or joint, such as a gallbladder or a knee replacement, the harvested tissue can be donated to this research program. Registered donors will complete an authorization and eligibility screening prior to surgery. Based on a collaboration with MyLymeData, medical history provided to MyLymeData can be paired with the tissue sample if the donor chooses this. More information, and appropriate forms for tissue and/or organ donation for Lyme disease research can be found by visiting NDRI’s Private Donor Program website or by calling NDRI at 800-222-NDRI (6374), Option 5.

Healthcare Providers

Click here for a one-page printable handout about ways for patients to participate in the biobank.

Click here for more information about the tissue collection program.