Seeking Blood and Tissue Samples
The Lyme Disease Biobank launched in 2015 is the only national entity working to accelerate research by collecting both blood and surgical/post-mortem tissue samples from individuals with persistent Lyme disease and other tick-borne infections. The program dramatically increases the volume of well-characterized blood and tissue samples to enable research efforts to accelerate medical breakthroughs in the understanding, diagnosis and treatment of Lyme disease and other tick-borne infections. The Lyme Disease Tissue Collection Program is a collaborative initiative comprised of the Lyme Disease Biobank, National Disease Research Interchange (NDRI) and MyLymeData Patient Registry. Researchers will be able to further examine patients’ medical histories to understand and explore how the bacteria that causes Lyme invades the body, causing symptoms that affect the joints, nervous and cardiovascular systems.
If you are a Lyme patient interested in donating blood samples, we are expanding collection sites in Northern California. If you are interested in blood donation opportunities, please contact us at firstname.lastname@example.org.
People with Lyme disease interested in donating tissue are encouraged to contact National Disease Research Interchange (NDRI) to register for the Living Donor Registry. Participating individuals must be 18 years of age or older, reside in the continental US, and be diagnosed with Lyme disease by a healthcare provider. Registered donors will complete an authorization and eligibility screening prior to donating tissue. If a registrant has a surgery that removes tissue from an organ or joint, such as knee replacement, the harvested tissue can be donated to this research program. Patients who are registered can also elect to have their essential organs donated for research after their passing. Potential donors can register for the Lyme Disease Biobank online through NDRI’s Private Donor Program (www.ndriresource.org/lyme-disease) or by calling NDRI at 800-222-NDRI (6374), Option 5. Researchers interested in obtaining samples should visit info@LymeBiobank.org.
For more information about the expansion of the Lyme Disease Biobank into tissue donation, please click here.