Help us make a difference!
In 2018, the Lyme Disease Biobank launched a tissue collection program to study how these infections invade tissues. We are collecting samples from surgeries, with a focus on knee and hip replacements, and post-mortem samples. This program is provided at no cost to patients and families.
Each participant’s donation has the ability to provide samples for more than 50 research projects. There are three ways to get involved and help advance research:
1) Know the Symptoms—Tell your Family, Friends, and Acquaintances
Make sure family, friends and acquaintances know the symptoms of Lyme disease. If you or someone you know is experiencing early symptoms, or have just been diagnosed, please consider donating a blood sample by making an appointment at one of our collection centers. The centers are located in select east coast, west coast and upper mid-west endemic areas. Donors must be 10 years of age or older and complete an authorization and eligibility screening prior to donating blood. Click here for a list of our collection centers.
2) Tell Your Patients About Future Organ Donation
All patients with Lyme disease are encouraged to register with Lyme Disease Biobank Tissue Program through our partner NDRI, and please also register with MyLymeData. Registering for the Lyme Disease Biobank Tissue Program through our partner NDRI as a future donor of post-mortem organs is critical, as it is rarely possible to evaluate how tick-borne disease may infect vital organs such as a person’s heart and/or brain. By also providing information about symptoms and medical history to MyLymeData, donors can assist researchers in understanding the disease. More information can be found by visiting NDRI’s Private Donor Program website or by calling NDRI at 800-222-NDRI (6374), Option 5.
3) If Your Patients Are Having Surgery
If your patients are having surgery, the discarded tissue can be donated to this research program. Registered donors will complete an authorization and eligibility screening prior to surgery. Based on a collaboration with MyLymeData, medical history provided to MyLymeData can be paired with the tissue sample if the donor chooses this. More information, and appropriate forms for tissue and/or organ donation for Lyme disease research can be found by visiting NDRI’s Private Donor Program website or by calling 800-222-NDRI (6374), Option 5.
Click here for a one-page printable handout about ways for patients to participate in the biobank.
Click here for more information for your patients about the tissue collection program.
We would like to recognize and thank the Steven & Alexandra Cohen Foundation, the LaureL STEM Fund, and all 2018 Fund-a-Need supporters who have contributed significantly to our Lyme Disease Biobank.