Primary Care Medicine and the Challenges of Diagnosing Lyme Disease

Bay-Area-Lyme-Foundation-Speaker-SeriesOn March 2nd, Bay Area Lyme again hosted another of its Speaker Series events. These popular salon-style events allow community members to come together in an intimate forum to share stories and hear directly from experts in the field.

The featured speakers this time were Dr. Christine Green, MD, a recognized leader in Lyme disease diagnosis and treatment and Allie Cashel, author of Suffering the Silence: Chronic Lyme Disease in an Age of DenialBoth shared personal and professional perspectives on the challenges of diagnosing Lyme disease. 

Lyme and Tick-Borne Disease in the US: Current State of Affairs

Dr. Ben Beard_CDCDr. Ben Beard, PhD, Chief Bacterial Diseases Branch at the CDC, visited with Bay Area Lyme and invited guests as part of the foundation’s ongoing speaker series. This donor-sponsored forum brings together researchers and other experts in an intimate forum for topical discussions with community members. Past events have included Emerging Leader Award winners, clinicians, and patient advocates.

The next event, on Wednesday, March 2, will feature Dr. Christine Green, Director of Education for ILADS, and Allie Cashel, author of Suffering the Silence: Chronic Lyme Disease in an Age of Denial.

For more information, see Speaker Series.

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As Chief of the CDC’s Bacterial Diseases Branch, Division of Vector-Borne Diseases in Fort Collins, Colorado, Dr. Beard coordinates CDC’s programs on Lyme disease, plague, and tularemia. His scientific interests include public health and the biology, ecology, and genetics of insect-borne diseases and vectors. More recently, he has been extensively involved in the CDC’s work to understand and mitigate the potential impact of climate variability and change on infectious disease ecology. He shared the CDC’s concerns about the expanding disease burden and distribution of Lyme and affirmed the importance of attracting new research interest and efforts focused on Lyme disease and other tick-borne infections.

Bay Area Lyme Foundation Offers Free Tick Testing Nationwide

FOR IMMEDIATE RELEASE

Media Contact:
Tara DiMilia, 908-947-0500, tara.dimilia@TMstrat.com

Bay Area Lyme Foundation Offers Free Tick Testing Nationwide

Free Tick Testing Initiative Is First In The Nation and Aims to Map Tick-borne Diseases Across the U.S. Through Crowd-sourcing

Silicon Valley, CA, February 16, 2016 — Bay Area Lyme Foundation, a leading nonprofit funder of innovative Lyme disease research in the US, today announced that the Foundation is the first to offer free tick testing for residents of the U.S.  Testing is available through a partnership with Nate Nieto, PhD, Assistant Professor, Department of Biological Sciences, Northern Arizona University and his lab.  Bay Area Lyme Foundation hopes to use this crowd-sourced data as a vehicle for gaining a greater understanding of the geography of tick-borne diseases in the U.S.  If successful in accumulating data, it will be the first crowd-sourced study of its kind.

Recovering From Lyme: A New Perspective

Theresa Wiles_312Theresa Wiles is a PSYCH-K® facilitator in Northern California. Her work involves helping patients to leverage their subconscious beliefs for positive outcomes. “Changing our thought patterns changes our ‘Field’ and we begin to create the reality we envision for ourselves. We start to act more intuitively, we experience more serendipity in our lives. The Universe and our subconscious mind starts assisting us in creating the life we envision for ourselves.”

Here, in this guest post, she shares a perspective about how these techniques might assist in the healing of long-term Lyme disease.

Can We “Hack” Our Way to Some New Solutions for Lyme?

Reflections from a Promising Dialogue at the AAAS Conference in Washington, DC, November 17-18

by Lia Gaertner, BAL Science Committee

AAAS_Logo and magSome weeks ago, two members of the Bay Area Lyme Foundation Science Committee, Wendy Adams and Lia Gaertner, attended a leadership symposium in Washington, DC, sponsored by the American Association for the Advancement of Science (AAAS) and entitled, “Innovations-X: Rising Above the Politics for Progress in Science.”  The AAAS is the world’s largest general scientific society, with more than 125,000 individual and institutional members, and the publisher of Science magazine. Its mission is “to advance science, engineering, and innovation throughout the world for the benefit of all people.” At this event, there were three “wicked problems” discussed over two days: climate change, global/mobile health, and Lyme disease.  This blog, written by Lia Gaertner, will focus only on the Lyme portion of the conference.

Bay Area Lyme Foundation Increases Momentum for Lyme Disease Research in 2015

FOR IMMEDIATE RELEASE

Media Contact:
Tara DiMilia, 908-947-0500, tara.dimilia@TMstrat.com

Foundation Supports More Researchers Nationwide and Expands Advisory Board to Include Cancer Researcher and Lyme Survivor Neil Spector, MD

Silicon Valley, CABay Area Lyme Foundation, a leading nonprofit funder of innovative Lyme disease research in the US, today released its roster of 2015 research grant recipients. Collectively these researchers received $1.5 million from the Foundation for research related to Lyme disease, a growing epidemic with more than 329,000 reported new cases each year according to the CDC. The organization also highlights the exponential increase in donations to the Foundation in 2015, including more than $6 million that will go directly to support research over the next few years, and announced the addition of Duke University cancer researcher/physician and Lyme survivor Neil Spector, MD to its Scientific Advisory Board.

“With so many unanswered scientific questions related to Lyme, it is exciting to be a part of the growing focus on Lyme disease research and increased scientific creativity in approaches to identifying new diagnostics and treatments,” states Linda Giampa, Executive Director.

The Steven & Alexandra Cohen Foundation Grants $6.5 Million to Bay Area Lyme Foundation

FOR IMMEDIATE RELEASE

Media Contact:
Tara DiMilia, 908-947-0500, tara.dimilia@TMstrat.com

The Steven & Alexandra Cohen Foundation Grants $6.5 Million to
Bay Area Lyme Foundation

Gift is part of the largest private donation for Lyme disease research—100% of grant will go directly to Lyme disease research programs.

SILICON VALLEY, California, December 17, 2015 –The Bay Area Lyme Foundation today announced that it received a $6.5 million grant from the Steven & Alexandra Cohen Foundation, the largest private donation ever given to Lyme disease research. The gift will support Bay Area Lyme’s mission of using new scientific research and innovations to make Lyme disease easy to diagnose and simple to cure.

“I was shocked to learn how many people suffer from Lyme disease in silence, and how much we still need to do to raise awareness and help find a cure,” said Alex Cohen, President of the Steven & Alexandra Cohen Foundation. “This gift is incredibly personal to me as I have experienced, first-hand, the chronic and debilitating side effects of this relatively unknown disease. We share Bay Area Lyme Foundation’s desire to find a cure for Lyme disease and hope that this gift will help pave the way to that important work.”

Straight Talk about Biofilms: A New Answer for Treating Lyme Disease?

Biofilms that form in the human body are up to ten thousand times more resistant to antibiotics than free-floating bacteria, making them very difficult to treat medically. These biofilms are responsible for the extreme persistence of many difficult to treat illnesses like Legionnaire’s disease, Staphylococcus aureus (“Staph”), and infectious bronchitis, that can trouble patients with frustrating symptoms for years.

Some years ago researchers showed that biofilms might also be helping the Lyme-causing bacteria evade treatment.(1) These findings have excited Lyme researchers who have since been exploring various treatment strategies designed to target the entire bacterial colony. If successful, these treatments might bring long-needed relief to patients with late-stage or persistent Lyme disease where antibiotics have previously failed.

At Bay Area Lyme Foundation, we are also inspired by these discoveries and hopeful about the treatment options they may bring. Recently we invited Daina Zeng, a Senior Scientist at Agile Sciences, to talk about the work her team is doing adapting Agile’s proprietary non-toxic organic compounds to disperse these bacterial colonies (technology they have leveraged for medical, agricultural, and industrial uses). Her post follows.

Alternative Treatments for Lyme Disease

KP StollerBy KP Stoller, MD, FACHM 

Dr. KP Stoller MD, is a Fellow of the American College of Hyperbaric Medicine (FACHM) and co-founder of the Hypberbaric Oxygen Clinic of San Francicsco (HBOSF). Having treated patients with Lyme disease for more than two decades, Dr. Stoller is an advocate for Hyperbaric Oxygen treatment (HBOT) and other alternative therapies for patients battling post-treatment Lyme disease (PTLD). He wrote to Bay Area Lyme to share his experience and expertise.

(Note: Bay Area Lyme Foundation is a research and informational organization, not a medical entity. The Foundation does not advocate or endorse any particular treatment or clinical approach but is devoted to the sharing of information and the facilitation of new research in hopes that better diagnostics tools and therapies can be discovered. Please consult your physician or clinician for more information about specific or individual treatments.)

Manganese Dependence

“In 2013, Woods Hole Oceanographic Institute discovered that the Lyme-causing Borrelia burgdorferi organism is manganese-dependent, because it substitutes manganese where almost all other organisms use iron for survival. By using manganese, the Borrelia is assisted in evading the immune system, which typically responds to foreign pathogens by starving them of iron. Further, manganese is important for the human body (helping to monitor blood sugar levels, supporting production of collagen for tissue repair, and even helping the central nervous system to function properly) and there is no easy way to shut down the manganese supply to these organisms.

Bay Area Lyme Foundation To Provide Tick and Lyme Disease Education in the Solano Resource Conservation District

FOR IMMEDIATE RELEASE

Media Contact:
Tara DiMilia, 908-947-0500, tara.dimilia@TMstrat.com

 

Bay Area Lyme Foundation To Provide Tick and Lyme Disease Education in the Solano Resource Conservation District

Program is open to the public and part of extensive education program throughout the Bay Area

Silicon Valley, California, October 26, 2015—The Bay Area Lyme Foundation, which aims to make Lyme disease easy to diagnose and simple to cure, will provide training about ticks and Lyme disease to naturalists, outdoor educators, program managers and the general public in the Solano Resource Conservation District, as well as other local agencies, to better educate area students, parents and classroom teachers. The program is part of an educational initiative started at Bay Area Lyme Foundation to inform California residents about prevention, the proper removal of ticks, and symptoms of tick-borne diseases.  It is based on new information that Lyme disease is endemic to the area.